Bob
Senior Member
- Messages
- 16,455
- Location
- England (south coast)
Trial Registry:
ACTRN12616000285459
4th March 2016
Active video gaming to increase physical activity in adults with chronic fatigue syndrome
Dr Katia Ferrar
https://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=370224&isReview=true
James Coyne's latest blog
Why patients should not enroll in a clinical trial of video gaming treatment for chronic fatigue syndrome
James Coyne.
4th June 2016
https://jcoynester.wordpress.com/20...aming-treatment-for-chronic-fatigue-syndrome/
Other resources
ME Australia blog
South Australian Xbox ‘increasing activity’ trial
Sasha Nimmo (Follow on Twitter here)
2nd June 2016
https://meaustralia.net/2016/06/02/south-australian-xbox-increasing-activity-trial-to/
ACTRN12616000285459
4th March 2016
Active video gaming to increase physical activity in adults with chronic fatigue syndrome
Dr Katia Ferrar
https://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=370224&isReview=true
Aims
1. To investigate if active video gaming is an effective management strategy to increase the physical activity levels of adults with CFS/ME
2. To investigate the relationship between allostatic load and physical activity in people with CFS/ME
3. To determine the feasibility and acceptability of active video gaming as a management strategy to increase physical activity levels in adults with CFS/ME
James Coyne's latest blog
Why patients should not enroll in a clinical trial of video gaming treatment for chronic fatigue syndrome
James Coyne.
4th June 2016
https://jcoynester.wordpress.com/20...aming-treatment-for-chronic-fatigue-syndrome/
If I were a patient with with chronic fatigue syndrome/myalgic Encephalomyelitis (CFS/ME), I would not consent to be in a clinical trial of active video gaming for adults. I would consider withdrawing my consent if I had already provided it.
Either decision would be within my rights. I would be acting for myself, but also out of concern for the patient community.
Other resources
ME Australia blog
South Australian Xbox ‘increasing activity’ trial
Sasha Nimmo (Follow on Twitter here)
2nd June 2016
https://meaustralia.net/2016/06/02/south-australian-xbox-increasing-activity-trial-to/
The University of South Australia’s Dr Katia Ferrar (physiotherapist), Dr Ashleigh Smith and Dr Kade Davison have ethical approval to begin the trial Active video gaming to increase physical activity in adults with chronic fatigue syndrome/myalgic encephalomyelitis. They have no set research criteria, despite research which shows 2 out of 5 patients are misdiagnosed with CFS/ME in Australia.
Dr Ferrar says that state organisations will be recruiting patients for them, however this isn’t how South Australia’s ME/CFS Australia (SA) and Bridges and Pathways describe their involvement. Bridges and Pathways say it isn’t part of their research collaborations and ME/CFS SA haven’t decided on whether to endorse the study.
Last edited: