Meat of the programme
Weds 28 Sep
Plenary Session 1: Big Data, Biomarkers & Stratification Chair: Prof Hugh Perry, Southampton University
10.00 Dr David Patrick University of British Columbia
TBC: to include focus on submaximal exercise testing in ME/CFS and other research areas in relation to the stratification of illnesses through work in public health
10.45 Dr Zaher Nahl, Solve CFS/ME Initiative
TBC: to include focus on Solve CFS/ME Initiative’s biobank and other research programmes
11.30 Prof George Davey Smith, Bristol Uni
ME/CFS Epidemiology & Genomics Alliance (MEGA) – A big data study
12.15 Prof Caroline Relton, Bristol
TBC: to include focus on the potential role of epigenetics in ME/CFS research and MEGA
13.00 David Ford Swansea University
TBC: to include focus on SAIL database in Wales and routinely collected data
13.30 Lunch
14.45 Workshops
Workshop 1: Exploring the challenges of gaining ME/CFS funding for the range of science required.
Prof Paul Littl, Southampton University
Prof Tom Whalley , NIHR Opal Wesbster-Philips
Discussion-based with presentations from:
• Perspectives from a funder
• Perspectives from a person with M.E.
Workshop 2: Research with people with severe M.E.
Victoria Strassheim, Newcastle University
Workshop 3: M.E. & POTS
Dr Lesley Kavi, POTS UK, and Prof Julia Newto, Newcastle
16.00 Refreshments Break
16.30 MRC-funded Research Project Updates
17.30 Panel Discussion with open Q&A: to include keynote presenters
18.30 Wine Reception
19.30 Conference closes for Associate Members
20.00 Private Dinner for Researchers Only
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THURSDAY 29 SEPTEMBER 2016 – Open to Researchers/Student Researchers only
09.00 Sonya Chowdhury, Action for M.E.
Mapping global research funding over the last 10 years – a Collaborative sponsored report
09.10 Dr Neha Issar-Brown, MRC
Enhancing research funding applications into ME/CFS
10.30 Dr Julius Bourke Queen Mary’s University,London
Neurophysiology of pain in ME/CFS
tbc tbc
12.00 Dr Sarah Knight Murdoch Children’s Research Institute
Improving quality of care in paediatric chronic fatigue syndrome
12.30 Dr Esther Crawley, Bristol
Paediatric CFS/ME
tbc
tbc
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