Would you mind elaborating my De Meirleir was a waste of money for your daughter? I am planning to see him in a couple of months and appreciate any input.
My daughter saw him twice. We flew to Brussels from Canada. There were also several telephone consults. We arrived extremely prepared: succinct summaries and results of various testing all typed out, history of treatments and physicians seen, and outline of how my daughter became ill.
He said very little. Just wanted lots of blood. She gave these 12 vials. Then she crashed. She reacts very badly to blood draws. She gave 6 on one day and 6 on another.
Here was the first problem: all he offered was saline. Said she could have as much as she liked. Even every day. Now when this has happened before, a doctor in New York and another in LA pumped my daughter with vitamin IVs, really good ones, and she would recover within a day or two.
But he had no IVs, he could offer. He was not interested when I explained what other physicians did.
He gave us a very short list of what she was to take. B12, that kind of thing. By the time we saw him we had done the circuit. So b12 was amusing. We took the plane home.
But we did not give up. A few months later. Rented an apartment and we were going to be serious about the treatment. It was a repeat though prolonged for a couple of months. We may have been there longer. She did not get immunoglobulin, nothing really. Just the saline IVs. She was so crashed from more blood work.
Then we were told she had Lyme. He said he would organize a hospital stay in Canada with some contacts, because my daughter was so weak. And he said she needed to be in hospital for the antibiotic IV. He never did what he promised.
Then we said we would return to Brussels for his treatment of the Lyme.
He said fine. And we indicated a month we would return.
My daughter called him and said we were coming, as planned.
His answer: you can't come I won't be here. And he never said when he would be Nd when she should come.
Eventually, a mailing arrived stating she had Lyme and that she should go see Harris.
So we just found that he wasn't reliable, in our case. Others adore him. So, what can I say.
And we lost so much serious money, flights, apartment, car rental. We did our best thinking here was a top doctor and we were going to park right beside him.
When we went to Harris it was equally bad. We flew from east to west, and the chap never came out to see my daughter. A lady assistant, not a doctor, met us and again the B12 and dome supplements were proposed. When I asked why my daughter couldn't see the doctor, though we had an appointment we thought, we were to,d he doesn't see the patient on the first visit.
So we flew home, and well desperate people are credulous, and we continued with their supplements, and there were calls to the lady, and then we woke up and realized he was not available. He knew nothing of my daughter, and never saw her!
I can write a book. This is just the briefest summary.