worldbackwards
Senior Member
- Messages
- 2,051
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
Not sure I say anything about the nature of ME. If you let me know what the issue is I'll see if I can do something about it.A good commentary in general, despite a minor issue about the nature of ME.
Hi @JohntheJack - A great blog and good summary with references. Is this your first blog? I have come across your twitter a/c before when looking at Coyneoftherealm but this is the first long blog I read. Good stuff!
I think what you wrote needed to be said and thanks for doing so. We need to start to get the problems with PACE into a wider context and a wider audience and this does it very well by explaining how this case affects all science and scientists. I see Coyne tweeted it so hopefully other scientists will sit up and take more notice.
Do you know if anyone from the ME community is going to the court case tomorrow?
My understanding is that a few who are known here and to patients will be there. I hope it all goes well for them.
My bad. I read several articles today but the minor error wasn't in yours. Sorry. On rereading it was plain the error I recall was not there, so it was somewhere else.Not sure I say anything about the nature of ME. If you let me know what the issue is I'll see if I can do something about it.
... a very complex and severe clinical phenotype covering a wide range of physiological and psychological disease origins.
My bad. I read several articles today but the minor error wasn't in yours. Sorry. On rereading it was plain the error I recall was not there, so it was somewhere else.
PS I misremembered this statement:
from file:///C:/Users/Alex/Desktop/Babble%202016/Does%20The%20Lancet%20care%20about%20patients%20%20%E2%80%93%20For%20Better%20Science.htm
I might even have got the pages I was on mixed up and commented on the wrong article.