Big new campaign starting.
There's an interesting specific action that anyone can do from their computer which I'll post about on another thread.
#MEAction said:On May 25th 2016, #MEAction is sponsoring a community-organized protest at the Department of Health and Human Services (HHS) in Washington, DC. ME patients, advocates, caregivers, and allies will join together to protest of the lack of government funding for research, clinical trials and medical/public education, leaving ME patients without relief.
Due to the nature of ME, we anticipate that many will not be able to personally attend. That is why we are launching the #MillionsMissing campaign, in combination with our protest. Millions of dollars missing in necessary research for suffering patients. As a result, millions of ME patients are missing from their work, schools, livelihoods, social activities, family affairs–moments of their everyday lives that so many are able to continue without a thought.
#MillionsMissing will remain an ongoing campaign within the ME and CFS community, even after the May protest. We plan to announce future initiatives in the coming months! If you have an idea for #MillionsMissing, tell us about it.
There's an interesting specific action that anyone can do from their computer which I'll post about on another thread.