el_squared
Senior Member
- Messages
- 127
Hi there,
So I have Celiac Disease and fibromyalgia and in the past year was diagnosed with CFS after testing high for various (past) infections -- EBV, HHV6, and others.
I have also developed a neurological problem in the past year -- it began after I took Levaquin for a sinus infection.
In August or Sept. I tested negative on all bands of the Western Blot Test. But a functional medicine doctor convinced me to pay for another Lyme test, done by Advanced Laboratory Services. It'll take a while because apparently they culture the blood sample for 16 weeks.
So on another forum, on FB, which was for the drug LDN, people were making claims that 90 percent of fibro people have Lyme -- and 90 percent of CFS people have Lyme. And I questioned that. And I got booted out of the FB group.
Now, I'm open to the fact that I might have Lyme, but I sort of doubt these 90 percent of CFS/fibro people actually have Lyme. Not sure how that would be proven at this point.
What do you think of this idea? Does anyone know of the Advanced Laboratory Services Lyme test? I am new to this chronic Lyme debate and don't know what to think.
I do seem to react well to antibiotics, which could be a sign of Lyme, but I don't always react well.
Anyway, I'm really sick and lost. I am trying to take antivirals per the Stanford CFS clinic but they just cripple me.
Laura
So I have Celiac Disease and fibromyalgia and in the past year was diagnosed with CFS after testing high for various (past) infections -- EBV, HHV6, and others.
I have also developed a neurological problem in the past year -- it began after I took Levaquin for a sinus infection.
In August or Sept. I tested negative on all bands of the Western Blot Test. But a functional medicine doctor convinced me to pay for another Lyme test, done by Advanced Laboratory Services. It'll take a while because apparently they culture the blood sample for 16 weeks.
So on another forum, on FB, which was for the drug LDN, people were making claims that 90 percent of fibro people have Lyme -- and 90 percent of CFS people have Lyme. And I questioned that. And I got booted out of the FB group.
Now, I'm open to the fact that I might have Lyme, but I sort of doubt these 90 percent of CFS/fibro people actually have Lyme. Not sure how that would be proven at this point.
What do you think of this idea? Does anyone know of the Advanced Laboratory Services Lyme test? I am new to this chronic Lyme debate and don't know what to think.
I do seem to react well to antibiotics, which could be a sign of Lyme, but I don't always react well.
Anyway, I'm really sick and lost. I am trying to take antivirals per the Stanford CFS clinic but they just cripple me.
Laura