charles shepherd
Senior Member
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PACE trial data release: MEA website poll for March
The PACE trial research group at Queen Mary University London (QMUL) have indicated that they would welcome the views of people with ME/CFS on their refusal to release anonymised data from the PACE trial >>
"We are currently seeking further ethical and scientific advice, as well as the advice of patients, on how best to provide independent decisions about appropriate access to relevant data in a way that balances the rights of trial participants, and future progress of the trial analysis and follow up, with the public interest in releasing trial data.”
This month's MEA website poll gives people the opportunity to express their opinion
MEA website question:
Vote via the home page on the MEA website:
http://www.meassociation.org.uk
As there is considerable international interest in this issue, overseas votes are welcome in this poll
MEA letter to QMUL supporting release of the PACE trial data:
http://www.meassociation.org.uk/201...o-release-of-pace-trial-data-9-february-2016/
Dr Charles Shepherd
Hon Medical Adviser, MEA
The PACE trial research group at Queen Mary University London (QMUL) have indicated that they would welcome the views of people with ME/CFS on their refusal to release anonymised data from the PACE trial >>
"We are currently seeking further ethical and scientific advice, as well as the advice of patients, on how best to provide independent decisions about appropriate access to relevant data in a way that balances the rights of trial participants, and future progress of the trial analysis and follow up, with the public interest in releasing trial data.”
This month's MEA website poll gives people the opportunity to express their opinion
MEA website question:
Should or should not the anonymised data from the PACE trial be released for independent analysis?
- Should be released (100%, 3 Votes)
- Should not be released (0%, 0 Votes)
- Not sure (0%, 0 Votes)
- No opinion (0%, 0 Votes)
Total Voters so far = 3
- Should be released (100%, 3 Votes)
Vote via the home page on the MEA website:
http://www.meassociation.org.uk
As there is considerable international interest in this issue, overseas votes are welcome in this poll
MEA letter to QMUL supporting release of the PACE trial data:
http://www.meassociation.org.uk/201...o-release-of-pace-trial-data-9-february-2016/
Dr Charles Shepherd
Hon Medical Adviser, MEA