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Hey everyone,
I'm quiet new to this forum, but I've got a question.
What I would like to know is if you guys have had quiet the same symptoms from the start until now, or that you've had totally different symptoms at different specialisms (e.g. cardiologist, neurologist, rheumatologist, optometrist etc)?
I've had so many different symptoms in the past 3 years (roughly 60-70) and I feel it is progressing everytime.
Especially the fatigue is getting worse and worse, that I shake a lot, my muscles start shaking when I do something active (can be even standing up) and I can't seem to train my muscles as they only seem to get less toned and more weak, somebody else with a similar motoric shaking when doing something active and getting weaker less toned muscles and more *skin*?
Therefore I have a fear that I have this continuously progressing disease that nobody knows of.
But then again, all my tests that have been done (tons of bloodwork, MRI's, ECG, eyetests, ECG and other cardio tests etc) showed no clear explanation or clear result, except the diagnosis of bradycardia (too slow heartrate), irregular heartbeat, severe dry eye condition, fibroymyalgia and ME (but not possible to test), three herniated discs in my lower back.
I always believed that the symptoms of CFS / ME were quite the same during the disease, but maybe I'm wrong. Have you guys ever had the feeling that it was getting worse and worse and start to get afraid of e.g. getting towards sooner death? (it might sound dramatic, but I do mean it)
Thanks and all the best to you!
Hugo
I'm quiet new to this forum, but I've got a question.
What I would like to know is if you guys have had quiet the same symptoms from the start until now, or that you've had totally different symptoms at different specialisms (e.g. cardiologist, neurologist, rheumatologist, optometrist etc)?
I've had so many different symptoms in the past 3 years (roughly 60-70) and I feel it is progressing everytime.
Especially the fatigue is getting worse and worse, that I shake a lot, my muscles start shaking when I do something active (can be even standing up) and I can't seem to train my muscles as they only seem to get less toned and more weak, somebody else with a similar motoric shaking when doing something active and getting weaker less toned muscles and more *skin*?
Therefore I have a fear that I have this continuously progressing disease that nobody knows of.
But then again, all my tests that have been done (tons of bloodwork, MRI's, ECG, eyetests, ECG and other cardio tests etc) showed no clear explanation or clear result, except the diagnosis of bradycardia (too slow heartrate), irregular heartbeat, severe dry eye condition, fibroymyalgia and ME (but not possible to test), three herniated discs in my lower back.
I always believed that the symptoms of CFS / ME were quite the same during the disease, but maybe I'm wrong. Have you guys ever had the feeling that it was getting worse and worse and start to get afraid of e.g. getting towards sooner death? (it might sound dramatic, but I do mean it)
Thanks and all the best to you!
Hugo
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