JaimeS
Senior Member
- Messages
- 3,408
- Location
- Silicon Valley, CA
So.
Several years ago, my first clue that something was going wrong with my overall health was a dramatic drop in iron levels. I don't remember the values, but I remember my GP asking if I had started blacking out or 'losing time'.
This came with severe LRQ pain. Looking back, I probably had a GI bleed that wasn't healing. At the same time, I had a period that lasted two and a half weeks -- would not stop bleeding. Even wounds on my skin wouldn't close.
Then, it went away.
Fast forward nine years and I've had bleeding problems once in a great while, where I simply don't clot. I've gotten my lady-hormones measured (while this was happening) and they are all normal, so it's (probably) not that kind of bleeding problem. I've got my Von Willebrand factors measured and they're normal.
What could cause this on-again, off-again sometimes-hemophilia? It's not something I typically worry about because it happens so rarely, but I've begun to wonder if it's an important part of the overall picture that I've been ignoring because it's so rarely an issue. Could this be a function of immune system dysfunction? I wonder...
Wild speculation welcome. Not something I'm trying to 'solve', more like something I'm trying to think more deeply about, and maybe understand better.
-J
Several years ago, my first clue that something was going wrong with my overall health was a dramatic drop in iron levels. I don't remember the values, but I remember my GP asking if I had started blacking out or 'losing time'.
This came with severe LRQ pain. Looking back, I probably had a GI bleed that wasn't healing. At the same time, I had a period that lasted two and a half weeks -- would not stop bleeding. Even wounds on my skin wouldn't close.
Then, it went away.
Fast forward nine years and I've had bleeding problems once in a great while, where I simply don't clot. I've gotten my lady-hormones measured (while this was happening) and they are all normal, so it's (probably) not that kind of bleeding problem. I've got my Von Willebrand factors measured and they're normal.
What could cause this on-again, off-again sometimes-hemophilia? It's not something I typically worry about because it happens so rarely, but I've begun to wonder if it's an important part of the overall picture that I've been ignoring because it's so rarely an issue. Could this be a function of immune system dysfunction? I wonder...
Wild speculation welcome. Not something I'm trying to 'solve', more like something I'm trying to think more deeply about, and maybe understand better.
-J