shannah
Senior Member
- Messages
- 1,429
Hi Everyone,
I'm posting on behalf of a woman by the name of Kara Spencer who has severe ME. She has been working on making an advocacy film for ME. Until today, I'm not sure I've ever heard of this project before.
A trailer was just posted today and it is excellent. It can be viewed here.
http://www.methehiddentruth.com/#!trailers-and-gallery/c1n8o
Myalgic Encephalomyelitis
Not Medically Unexplained
Medically Ignored
A write up about the film can be viewed here.
http://www.methehiddentruth.com/#!about/c2344
She has an appeal out on FB and is asking for participation (photos) from others who are ill. I'm posting here with the hopes that others can help. Here is what she writes:
"WE ARE GETTING THERE!
Can you donate any photos for use in the documentary? We need more photos of Severe ME patients for the opening montage!
I've had a relapse... in November, and I've just been in hospital for an admission to prevent full blown sepsis. I've developed oxygen saturation problems, immune compromising problems, I'm being investigated for adrenal insufficiency, my kidney problems have increased and I've become weaker.
Of course, all this is good for the documentary at least and has been filmed at every stage. After so much time, it finally feels like I can see the light at the end of the tunnel with the documentary. I've almost got enough footage and will stop filming in April to focus solely on editing. That is the hardest part. But I'm getting there!
I am now working on with earnest to get the opening montage done, which I wanted to leave until I'd gathered a lot of footage. This is where I plea for you to help. In order to demonstrate the number of us out there with such severity, I need more than my face in this montage and throughout the whole thing. What I'm really after is photos of Severe ME patients, at their worst.
Its a brave thing to share such a thing. I understand that this might not be something everyone wants to do. But this film is intended for medical health professionals, to help them understand how to work and interact with severe patients, as their needs are so complex and unique to anything they've ever seen before.
I would be honoured if you were able to send me your photos for use in the documentary montage, which I could send to you before you finally agree and can take it out if we need to. The address you need to send it to is kjsapplications@hotmail.com
If that fails, you can always send to my inbox on Facebook at.
Myalgic Encephalomyelitis: The Hidden Truth Documentary
https://www.facebook.com/METhehiddentruthdocumentary/
Thank you so much for your unfailing support despite the long wait for this documentary. I am getting there, and with your help I am sure I will be able to overcome the final hurdles. "
Many thanks, Kara x
I'm posting on behalf of a woman by the name of Kara Spencer who has severe ME. She has been working on making an advocacy film for ME. Until today, I'm not sure I've ever heard of this project before.
A trailer was just posted today and it is excellent. It can be viewed here.
http://www.methehiddentruth.com/#!trailers-and-gallery/c1n8o
Myalgic Encephalomyelitis
Not Medically Unexplained
Medically Ignored
A write up about the film can be viewed here.
http://www.methehiddentruth.com/#!about/c2344
She has an appeal out on FB and is asking for participation (photos) from others who are ill. I'm posting here with the hopes that others can help. Here is what she writes:
"WE ARE GETTING THERE!
Can you donate any photos for use in the documentary? We need more photos of Severe ME patients for the opening montage!
I've had a relapse... in November, and I've just been in hospital for an admission to prevent full blown sepsis. I've developed oxygen saturation problems, immune compromising problems, I'm being investigated for adrenal insufficiency, my kidney problems have increased and I've become weaker.
Of course, all this is good for the documentary at least and has been filmed at every stage. After so much time, it finally feels like I can see the light at the end of the tunnel with the documentary. I've almost got enough footage and will stop filming in April to focus solely on editing. That is the hardest part. But I'm getting there!
I am now working on with earnest to get the opening montage done, which I wanted to leave until I'd gathered a lot of footage. This is where I plea for you to help. In order to demonstrate the number of us out there with such severity, I need more than my face in this montage and throughout the whole thing. What I'm really after is photos of Severe ME patients, at their worst.
Its a brave thing to share such a thing. I understand that this might not be something everyone wants to do. But this film is intended for medical health professionals, to help them understand how to work and interact with severe patients, as their needs are so complex and unique to anything they've ever seen before.
I would be honoured if you were able to send me your photos for use in the documentary montage, which I could send to you before you finally agree and can take it out if we need to. The address you need to send it to is kjsapplications@hotmail.com
If that fails, you can always send to my inbox on Facebook at.
Myalgic Encephalomyelitis: The Hidden Truth Documentary
https://www.facebook.com/METhehiddentruthdocumentary/
Thank you so much for your unfailing support despite the long wait for this documentary. I am getting there, and with your help I am sure I will be able to overcome the final hurdles. "
Many thanks, Kara x
I know how difficult the easiest of things can become so I totally understand. I'm sure Kara does as well.
