What NOT to say to someone with ME/CFS - from the BBC

[charles shepherd]

Guidance for young people put together by BBC Newsbeat - for younger viewers…..

http://www.bbc.co.uk/newsbeat/artic...someone-with-chronic-fatigue-syndrome---or-me

 

[sarah darwins]

Guidance for young people put together by BBC Newsbeat - for younger viewers…..

http://www.bbc.co.uk/newsbeat/artic...someone-with-chronic-fatigue-syndrome---or-me

That's actually pretty good! But then, Newsbeat and Newsround have been the BBC's best news output for years, much better than the "grown-up" news.

I guess the contributors are too young to have heard much of our old favourite "ME? Yeah, I had that."

 

[Sidereal]

Not bad.

 

[MeSci]

They forgot "But you look so well!".

 

[worldbackwards]

Felicity Morse, social media editor at Newsbeat is a former ME patient. Had some choice words to say about the PACE Telegraph coverage as I recall. Perhaps she was involved, be surprising if she wasn't.

 

[sarah darwins]

Felicity Morse, social media editor at Newsbeat is a former ME patient. Had some choice words to say about the PACE Telegraph coverage as I recall. Perhaps she was involved, be surprising if she wasn't.

That's interesting.

 

[worldbackwards]

That's interesting.

http://forums.phoenixrising.me/inde...ollow-correspondence.42491/page-3#post-687995

 

[Mary]

I especially liked the comments made by the young people who had CFS/ME - this in particular hit me:

People see it as, 'Oh at least you're still doing things,' but to us, our lives have stopped and theirs have carried on.

I can't imagine being that young and that sick. Full-blown CFS/ME didn't hit me until age 47 (after a slow steady decline of some 12 years)

 

[Marco]

Fair enough and I know it's aimed at youngsters but what about us 6 foot 121/2 stone males who've had it for 30 years?

 

[jimells]

Fair enough and I know it's aimed at youngsters but what about us 6 foot 121/2 stone males who've had it for 30 years?

We are Useless Eaters...

 

[taniaaust1]

good article .. and its great to see an article focused on the younger ones with this, those who should be in their prime. Helps with the misconception still out there that one has to be older to get this.

 

[Snow Leopard]

Least offensive media article I've read all week!