charles shepherd
Senior Member
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Severe ME - media coverage in The Sun (UK)
http://www.thesun.co.uk/sol/homepag...hares-surname-with-Twilights-heart-throb.html
Background note from Tony Britton at the MEA:
The news agency which put this story out to The Sun have rather changed my quote to suit them. What I actually told them was:
"I don't know Hollie. But it 's probably fair to say that people with this horrible illness who do recover probably go into a remission, and it requires significant changes in lifestyle – much less stress, improvements to work-life balance, better nutrition – for the symptoms not to flare up months or even years later. They've got to take care of themselves from now on.
"Holly is one of the lucky ones. There are thought to be 250,000 children and adults with M.E., otherwise known as chronic fatigue syndrome, in the UK. The vast majority just don't recover their full strength.
"A significant minority – possibly up to a quarter of all sufferers at any one time – spend their lives in darkened bedrooms because they are tormented by bright light and where the rumble of passing traffic can make then shake uncontrollably. Even those with mild forms of M.E. never seem to shake off what feels like a nasty dose of flu.
"There are no universally recognised biomarkers, diagnosis can be a difficult and lengthy process and, although the situation is improving, many doctors are still unsympathetic. Add to that the neighbours, friends and colleagues who dismiss people with M.E. as malingerers and time-wasters and you have a pretty unpleasant cocktail which will only disappear when research leads us to the causes of the illness, and a possible cure."
http://www.thesun.co.uk/sol/homepag...hares-surname-with-Twilights-heart-throb.html
Background note from Tony Britton at the MEA:
The news agency which put this story out to The Sun have rather changed my quote to suit them. What I actually told them was:
"I don't know Hollie. But it 's probably fair to say that people with this horrible illness who do recover probably go into a remission, and it requires significant changes in lifestyle – much less stress, improvements to work-life balance, better nutrition – for the symptoms not to flare up months or even years later. They've got to take care of themselves from now on.
"Holly is one of the lucky ones. There are thought to be 250,000 children and adults with M.E., otherwise known as chronic fatigue syndrome, in the UK. The vast majority just don't recover their full strength.
"A significant minority – possibly up to a quarter of all sufferers at any one time – spend their lives in darkened bedrooms because they are tormented by bright light and where the rumble of passing traffic can make then shake uncontrollably. Even those with mild forms of M.E. never seem to shake off what feels like a nasty dose of flu.
"There are no universally recognised biomarkers, diagnosis can be a difficult and lengthy process and, although the situation is improving, many doctors are still unsympathetic. Add to that the neighbours, friends and colleagues who dismiss people with M.E. as malingerers and time-wasters and you have a pretty unpleasant cocktail which will only disappear when research leads us to the causes of the illness, and a possible cure."
