Antares in NYC
Senior Member
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- 582
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- USA
Many of us in these forums are familiar with the controversies on Lyme, the unsavory characters surrounding it, the inexplicable chummy and privileged relationship (revolving door, really) between the CDC and IDSA, and their campaign (proven through FOIA requests) to vilify patients.
As you know, they even came up for a term for those Lyme patients (20 - 25% of the total) that never get better, even after treatment. They call it "PTLD" (post treatment Lyme disease), but they don't investigate it or try to find a way to improve the lives of now hundreds of thousand of people affected. As many have suggested before, PTLD is a garbage bin diagnosis to hide their shortcomings.
Well, this is going to make you mad:
Apparently the CDC has been funding lots of money into PTLD for over 5 years... but zero studies have been produced. Zero, nada, zilch.
So... where did the money go?
Well, check this out: https://projectreporter.nih.gov/project_info_history.cfm?aid=8138670&icde=0
Here's a screenshot before they take it down (this info was available on other official websites but now those pages are down, since social media picked up on this mess last week):
Infuriating, isn't it?
We are talking $1.5 million and counting. Those are your tax dollars, btw.
It has been a long time since I started distrusting the US medical authorities on anything related to Lyme or ME/CFS, but this is just another slap in the face for thousands of patients, and another wrinkle in this convoluted story that makes us distrust them even more on anything they have to say about this horrific and debilitating disease.
Seriously: at what point you start calling this "hush money"?
Ok, rant off. I had to get this off my chest.
As you know, they even came up for a term for those Lyme patients (20 - 25% of the total) that never get better, even after treatment. They call it "PTLD" (post treatment Lyme disease), but they don't investigate it or try to find a way to improve the lives of now hundreds of thousand of people affected. As many have suggested before, PTLD is a garbage bin diagnosis to hide their shortcomings.
Well, this is going to make you mad:
Apparently the CDC has been funding lots of money into PTLD for over 5 years... but zero studies have been produced. Zero, nada, zilch.
So... where did the money go?
Well, check this out: https://projectreporter.nih.gov/project_info_history.cfm?aid=8138670&icde=0
Here's a screenshot before they take it down (this info was available on other official websites but now those pages are down, since social media picked up on this mess last week):
Infuriating, isn't it?
We are talking $1.5 million and counting. Those are your tax dollars, btw.
It has been a long time since I started distrusting the US medical authorities on anything related to Lyme or ME/CFS, but this is just another slap in the face for thousands of patients, and another wrinkle in this convoluted story that makes us distrust them even more on anything they have to say about this horrific and debilitating disease.
Seriously: at what point you start calling this "hush money"?
Ok, rant off. I had to get this off my chest.
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