I am listening, listening, listening, but anecdotal accounts of 'I got better' are no use to me because I have spent forty years hearing that from people who quite clearly were just hoping they were better or had got better at the same time as a treatment by coincidence.
I'm truly sorry you believe that anecdotal reports are useless. PWC have been telling their doctors for over 30 years that exercise makes them much worse and can actually be dangerous. However, because this goes against everything doctors have ever been taught, in the main they have ignored this, come up with insane theories such as "fear of exercise" (I think there should be a special level of hell for whoever came up with that idea), told us we were manlingerers, told us to exercise, causing serious damage, etc. etc. etc. Instead of truly listening to their patients, and saying, I don't understand it but you're not nuts, and maybe some valuable research would have been started a long time ago.
In terms of potassium: I'm truly sorry you're dismissing reports from me and others that it has been extremeliy helpful. I wasn't just "hoping" to feel better. I've hoped for over 30 years, but almost nothing has helped, and when something helps, I notice big time. And it wasn't treatment "by coincidence". I notice very carefully how I react to every supplement I take. I can't make you believe me but there are enough people on this board who have been helped by potassium, that I think you should take notice of it. Yes,. we don't have the studies you would like, but that doesn't mean none of this is real. What it means is that studies
should be done. In the main. people on this board are very well informed, most often more informed than their doctors.
And again, I know you are aware of the potential for hypokalemia when treating megaloblastic anemia. Here's one link:
http://www.mybwmc.org/library/41/033700 So it's not totally without foundation that taking folate or B12 in the presence of a deficiency would cause hypokalemia. The research is there.
So this is what I mean by I wish doctors would listen to their patients, instead of dismissing things they don't understand.