I just posted a blog on the NEI Center in New Jersey. Its a great project! To show how political these things get - the center was originally going to involve Lyme disease as well and Marly got the support of an international Lyme organization but when a Lyme organization based in New Jersey found out about it they hit the roof and sabotaged the project because Lyme Disease is a real disease and chronic fatigue syndrome is not. They couldn't bear to be associated with us. So they got their political contacts to stop the project just as it was about to be voted on. They also went after one of the principals of the project at the University he works at. Now he has had to back way off because the university is upset. They've also spread rumors that the project was going to have a psychiatric slant. Its really ugly stuff.
Why would Pandora or NEI want to include Lyme disease?
I don't believe anyone is saying Lyme is a disease and M.E/Chronic fatigue syndome is not (although reading here at times, anyone might think saying a couple of Hail Mary's or learning about one's ability to deal with stress was a cure for M.E/CFS).
Pandora include a whole list of syndromes/illnesses with as yet no known cause, Lyme disease has a known cause, with tests and treatment (although treatment is controvercial).