Catherine Hale - "The politics of stigma with ME/CFS"

[worldbackwards]

Great blogpost from Catherine Hale, taking in PACE, stigma and access to care and treatment.

There is a reason people with ME struggle to access their entitlements which is unique to this contested illness and its embattled history. You could call it “stigma”; but it’s unlike the stigma of HIV or mental illness...The peculiar stigma of ME/CFS is this: we have been branded not credible witnesses to our own condition.

http://limitedcapability.blogspot.co.uk/2015/12/the-politics-of-stigma-with-mecfs.html

 

[Little Bluestem]

bump

 

[octoberpoppy]

Great blogpost from Catherine Hale, taking in PACE, stigma and access to care and treatment.


http://limitedcapability.blogspot.co.uk/2015/12/the-politics-of-stigma-with-mecfs.html

Thank you for posting my blog on here! I'm newly registered on PR and not yet navigated my way round the site but I'm very grateful to you for sharing

 

[Aurator]

It's a brilliant and moving article that perfectly encapsulates the unique cruelty that people with ME have had to endure in a world that has been repeatedly persuaded of their unworthiness. And it puts to utter shame the people who have been responsible for doing the persuading.

 

[octoberpoppy]

Thank you. I normally research and write in the field of welfare benefits for sick and disabled people and social care in the UK, so this is a bit of a departure for me. But my hope is to bring awareness of this injustice to the community of disability activists in the UK. I find many parallels between our story and the struggle by the disabled people's movement for the right to independent living, for example.

 

[waiting]

@JenB -- great post to highlight in ME Action re: stigma & strategy and PACE criticism.

Edit: Jen, you are quoted near the end of her article, too. And a link to your website.