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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Did you read Gabby's story and the comments of well known ME/CFS doctors on Klonopin and tapering?I did read the old threads.
Basically, this drug makes me sick. And I'm 'hanging by a thread'.
Did anyone switch to diazepam or follow some approach other than 'go slow' ?
I did read the old threads.
Do you mind saying what dose you were taking when you quit?Out of complete ignorance on the subject I quit Klonopin "cold turkey". It was a living hell
If I remembered I'd be happy to say, but I honestly don't remember. I was taking it based on Cheney's "neuro protective" idea, which I now think he just made up, and all that I remember was that the dose was significant...nothing like a "low dose" strategy. When the dose became a problem, the advice Cheney was giving was to increase it. I reached a point where I couldn't increase it, and I couldn't decrease it...and then hell began.Do you mind saying what dose you were taking when you quit?
...The forum almost religiously defends the Ashton protol/'5 to 10 % dose cuts every two weeks', direct taper or tapering with diazepam. Well, what if that doesn't work ?