OMI big data study receives $500,000 donation

[John Mac]

Just received this email from the OMI

Edit: Just realised this news was originally announced on their website on November 11th.
Though I think it's now started is new info.

It’s happened again! A very generous anonymous donor has expressed confidence in Open Medicine Foundation (OMF) research by donating $500,000 to expand the OMF ME/CFS Severely Ill Big Data Study.
As you may recall, just a few months ago, we reached our goal of $1 million to do the Severely Ill-BIG DATA Study, which is Phase 1 of the End ME/CFS Project.
How this big donation will help:
With these new funds, we have increased the types and number of tests that will be included in the OMF ME/CFS Severely Ill-BIG DATA Study. This study will give us a thorough, deep-dive and comprehensive molecular profile of severely ill ME/CFS patients. You can see the revised description of the study, with the new tests/categories to be run, at this link.
More details of the tests included will be forthcoming. This study has now been launched and will take 9-12 months.

 

[adreno]

Wow, wow and more wow. I wonder if it's the same donor who gave to Colombia.

 

[SOC]

This is wonderful news! I'm SO grateful to this anonymous donor. I wish we could thank him/her/them directly.

 

[*GG*]

Yes, thank you so much for your donation! You are a silver lining in our grey clouds

GG

 

[Sasha]

Terrific that big donors are weighing in here, and that's testament to the fantastic efforts of Ron Davis and his family.

Thank you, big donor!

 

[snowathlete]

Fantastic news as this enables the End ME/CFS Project to run a great many more tests - if you haven't looked yet, follow that link in the original announcement and see for yourself. More funding will mean they can look at even more. I fully expect this research to pay off in a big way and I am eternally grateful to this donator who has given so generously.

 

[Sidereal]

Brilliant news! This study could generate some very useful leads.

 

[alex3619]

 

[Marky90]

Well a huge thank you to the donor!!
Very moving that we finally got so many great studies in progress!

 

[msf]

I think we should build a statue (not ourselves) to Anonymous. I then hope Anonymous comes forward to claim the credit, like in Curb Your Enthusiasm (not really relevant, I just love that show).

 

[ScottTriGuy]

Savouring the kindness of this savior.

 

[Daisymay]

Absolutely wonderful! Thanks so VERY, VERY much to the anonymous donors, thank you x

 

[Gingergrrl]

Amazing news and God Bless You to another amazing anonymous donor!

 

[ghosalb]

How generous of you Mr or Ms donor
knowing you someday will be a honor
Even if we can not know you ever
you will be always in our prayer

 

[Groggy Doggy]

Thank you so much (anonymous donor)!!!!! You have made my day!!!

 

[adreno]

You have made my day!!!

That was probably worth all $500.000.

 

[Bob]

It's a brand new donation, and not a reannouncement of the 11th Nov donation.

https://twitter.com/i/web/status/674141094037196800

 

[A.B.]

Very nice.

I was thinking the other day that these donations are more than just money. They're a signal that will hopefully encourage others to donate as well, and put pressure on the NIH to contribute.

These donations are worth more than their nominal amount.

 

[John Mac]

Very nice.

I was thinking the other day that these donations are more than just money. They're a signal that will hopefully encourage others to donate as well, and put pressure on the NIH to contribute.

Exactly
Wasn't it when the Norwegian ME group got halfway to funding the latest Rituximab trial that the Norwegian government relented and decided to fund the other half.