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I sometimes think that some people with CFS have such compromised immune systems that even a little too much physical acitivy puts too much strain on their body. After that it isn't able to fight off infections anymore.
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Anybody get a sore tongue as they overdo it? I'm thinking this is herpes activation, but not sure.
I get al lot of the other stuff mentioned here too.
Everyone recommends exercise. Walk, swim in a pool, etc. I get so winded and exhausted, I am in and unable to function. It is not worth it. I would love to have a cellulite free tummy and awesome butt...it still looks good....but ya know, it makes me worse working on it. I live in a 3 floor walk up. 3 flights of stairs. That is my exercise. That is it! I could ski two years ago. This sucks!
Plus, chlorine is bad for us CFIDS folks. Kills the good bacteria in you.
I dont think I have BP issues and I dont have pain as such just aches that dont warrant painkillers. I do have this issue with my legs same as you. They seem to be like it all the time and I can't move them very fast, I walk as slow as a snail. The more I use my legs the worse they get at the mo 5 -10 mins is all I can manage before I feel like I cant go any further. They just feel so weak like jelly and lead at same time, if thats ever possibe lol. If I have pushed myself too much I crash big time and cant hold my body upright without feeling like I will collapse, but I know I wont, if that makes sense lol. I also feel dizzy quite a lot have problems focusing my eyes but not necessarily blurry and have light sensitivity. Am not sure whether it happens due to excercise though.Hi; if I exercise too much (and these days that may mean just walking 12 mins particularly in the afternoon) I first feel tired and legs feel heavy and unwilling, then maybe a bit of tightness around the chest; if I then rest, I may become aware of a slowly growing discomfort, pain in my lower left rib area that may spread to my lower right ribs. If I then take my BP, it is probably rising, and if I check it again in another hour it may, if this is going to be a bad day, rise as high as 190/95, with increasing pain. I have on a couple of occasions gone to Emergency, to be told that my ECG is normal, blood tests normal, and finally discharged usually feeling a bit better and less scared.
I know the feeling, 5 months ago I was cycling 10 to 20 miles 5 days a week, or was on my turbo trainer, I was enjoying off roading in muddy woods falling off my bike into the dirt or on one occassion upside down with my legs stuck in a tree, was so much fun. I really miss it now I am piling on the pounds cause I cant do muchi wish i wish i could exercise, my legs are getting wobblier and wobblier, fat round my middle (oh the days of a perfect flat tum!), it's soooo depressing. i tried to do yoga exercises on the wii fit, but felt so much worse after it i had to give up again!!!