digital dog
Senior Member
- Messages
- 646
I know it wouldn't change us physically but how would it change your life if ME was a recognisable illness and the media was on our side and people knew just how sick we truly are?
A lady at my daughters school had cancer (she is ok now thankfully). People rallied around her but she did a marathon during chemo for FS!
Do you think we will ever get the compassion and understanding we deserve? It would appear that we suffer much more than the majority of other illnesses in terms of quality of life but get the most stick.
I don't even bother saying I have ME. I say I have thyroid issues as after 18 years I cannot stomach the prejudice and ignorance.
If we could just get a few documentaries on prime time TV then at least SOMEONE might have a better understanding of the level of suffering.
My hope is for the rituximab trials and all the people who have taken it to throw themselves at the media. I would like to think that if any of us did get better we would not forget those left behind.
I wish people understood. I wish people could just feel as we do for a day.
A lady at my daughters school had cancer (she is ok now thankfully). People rallied around her but she did a marathon during chemo for FS!
Do you think we will ever get the compassion and understanding we deserve? It would appear that we suffer much more than the majority of other illnesses in terms of quality of life but get the most stick.
I don't even bother saying I have ME. I say I have thyroid issues as after 18 years I cannot stomach the prejudice and ignorance.
If we could just get a few documentaries on prime time TV then at least SOMEONE might have a better understanding of the level of suffering.
My hope is for the rituximab trials and all the people who have taken it to throw themselves at the media. I would like to think that if any of us did get better we would not forget those left behind.
I wish people understood. I wish people could just feel as we do for a day.