http://disabledintorybritain.com/20...e-of-attending-an-nhs-cfsme-clinic-evaluated/
Here's the most interesting part, I thought:
Here's the most interesting part, I thought:
Why wasn’t I evaluated?
At no point during the time I was a patient at the NHS CFSME clinic was I handed an evaluation form. Not even after I did Graded Exercise Therapy – when I had an injury and when I told the physiotherapist of this, was asked why that would stop me from doing exercise.
My experience of increasing symptoms through attending the CMT will never be formally captured, neither will the experiences of the other people who didn’t complete it either.
CB told me that only half of the CMG who started the group finished it.
The interaction with the physiotherapist who suggested that I could continue exercising and didn’t ask the extent of my leg injury before giving me that advice will also never be fed back.
I think this is blatant gerrymandering of patient evaluations in order to capture the opinions of those most capable of attending an 8 week CMG.
The evaluations will capture those that are likely to be higher functioning MECFS patients. This is called research bias.
When this data is fed back to the clinical managers, were the managers aware that people are being selected based on criteria that automatically show a bias?
If so, what does that say about the clinical managers’ interest in hearing views from the broader patient group or the team in hearing things that did not necessarily support their treatments?