Rebecca2z
Paradise, Ca
- Messages
- 248
- Location
- Paradise Ca
Its been 7 months since my Rituxan treatments and I just wanted to post on my current state.
While I have seen improvements in my energy and fatigue I have to say that what has surprised me and has been the most prominent change in me is the brain fog, this was so debilitating for me and now that I don't have that I can see this is what was sucking the life out of me.
When I wake up in the morning I am awake now, I can think. I can tolerate sights, (light) sounds and activity around me where before I couldn't. I can think so clearly now. This brain fog was what was so fatiguing and I didn't realize it. So I have to say this is my biggest improvement.
Equal to the changes in my ability to think clearly would be the changes in my autonomic issues, I have had major improvements in these problems, I can even sweat a tiny bit. The neuropathy in my feet has improved dramatically. My low blood pressure is better. I am off all drugs except a small dose of Northera ( for low BP)
Another notable change is in my fatigue, it is much less, not entirely gone but much better. I now can recover much quicker after activities.
All in all for me the risks of doing Rituxan were worth it. I have my B-cells checked every 3 months, I am due to have them checked in Nov. So I maybe getting one treatment of RTX in Dec. I am not feeling the effects of the RTX 'wearing off' at this point.
As far as my dx of discoid lupus and Ehlers Danlos the RTX has made no changes, which I didn't expect that it would.
Hope this helps !
Rebecca
While I have seen improvements in my energy and fatigue I have to say that what has surprised me and has been the most prominent change in me is the brain fog, this was so debilitating for me and now that I don't have that I can see this is what was sucking the life out of me.
When I wake up in the morning I am awake now, I can think. I can tolerate sights, (light) sounds and activity around me where before I couldn't. I can think so clearly now. This brain fog was what was so fatiguing and I didn't realize it. So I have to say this is my biggest improvement.
Equal to the changes in my ability to think clearly would be the changes in my autonomic issues, I have had major improvements in these problems, I can even sweat a tiny bit. The neuropathy in my feet has improved dramatically. My low blood pressure is better. I am off all drugs except a small dose of Northera ( for low BP)
Another notable change is in my fatigue, it is much less, not entirely gone but much better. I now can recover much quicker after activities.
All in all for me the risks of doing Rituxan were worth it. I have my B-cells checked every 3 months, I am due to have them checked in Nov. So I maybe getting one treatment of RTX in Dec. I am not feeling the effects of the RTX 'wearing off' at this point.
As far as my dx of discoid lupus and Ehlers Danlos the RTX has made no changes, which I didn't expect that it would.
Hope this helps !
Rebecca