Do people hear think its likely that Judy will mention the percentage of positives in the Ashford 50 when she talks at the Invest In Me Conference next week? Or do you think she just won't mention it?
Pam
It's what I'm hoping for..
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Do people hear think its likely that Judy will mention the percentage of positives in the Ashford 50 when she talks at the Invest In Me Conference next week? Or do you think she just won't mention it?
Pam
It's what I'm hoping for..
It will be as it is. Patience, people. Meanwhile, smile, the sun is shining and the birds are singing (if you can hear them through the tinnitus lol)
Yep we got sun. And a pair of goldfinches are going toe to toe right now with a male blackbird in a sort of sing-off battle of the birds.
I love this time of year. And did I ever mention that Judy is a goddess?
And of yeah, good luck to all those going to London for the conference. You better tweet louder than those goldfinches or else? :innocent1:
:victory::victory::victory::victory:
Looks like things are moving again as far as the blood collection is concerened. Had an email from the phlebotomy company today saying they are 'working on contacting everyone on the participant list' and thanking us for our patience. No dates or venues mentioned yet though.
Me too, same email, maybe next week or the week after then for venue info.
Anyone else had this new email? I am down for a home draw and have not received this email. I don't want to bug Ed Cutler, but I don't like being in the dark.
Suggestions/help please?
Adam
Can't people get a private nurse to take the blood and then get a courier/friend to take their blood to where it needs to go? (E.g. via train).
(I did that with mine) and thus lived miles away from where the blood was taken to before being shipped off to the USA.
It's rather unrealistic to expect disabled people to be able to get to a clinic, being that at minimum, 25% are bed bound.
.
No I got the same e-mail and I'm not down for a home visit. Think it was just a general one to make us still feel in the loop so to speak, I would send an e-mail to Ed if I were you Adam, just to make sure you are still on the latest list.
DysautonomiaXMRV;88391]Hi. Well that's very gracious of the organisers and great to hear, thank you.
At least the Ash Cloud has gone it seems.
I'm so sick of the NHS I'm considering going to a newspaper about XMRV.
Total black out here as you know. (An ash cloud of disinformation!!!).
Anyone else had this new email? I am down for a home draw and have not received this email. I don't want to bug Ed Cutler, but I don't like being in the dark.
Suggestions/help please?
Adam
Hi. Well that's very gracious of the organisers and great to hear, thank you.
At least the Ash Cloud has gone it seems.
I'm so sick of the NHS I'm considering going to a newspaper about XMRV.
Total black out here as you know. (An ash cloud of disinformation!!!).
Hi Adam, I presume they will be in touch in due course, the email I got said:
' The staff of PSI is working diligently to make sure everyone is accommodated for both the in home collections and those able to travel to collection locations.'
and also:
'For those of you who have e-mailed and need a home collection we will be e-mailing you individually and letting you know who your phlebotomist will be and their contact info.'