Research 1st
Severe ME, POTS & MCAS.
- Messages
- 768
The research collaborative is apparently the psych lobby with a new name, hardly surprising as the MRC are involved. (The MRC historically have refused funding for biomedical research and only funded psychiatry).
No MRC funded study has even been produced for ME, of any worth. The research of worth, is privately funded, away from the state (what a surprise again).
It's easy to despair looking at the British denial of ME (on first glance), but then you realise they are the current laughing stock of CFS research globally, so not reflective on the true science. Thank heavens for the Norwegians, Japanese, Americans (at Stanford) and other people not trapped under the hypnotic trance of Marxism influencing health care delivery, influencing decision making of what area is 'best' to study, by excluding the patients with actual signs of neurological and immunological disease.
If we compare the stubbornness of the mind-body theorists inability to evolve with the science Vs the intelligence of Fluge + Mella trying chemotherapy in patients who reported the treatment unexpectedly helped their 'CFS' (leading to a surprising finding of autoimmunity in 'CFS') there is a stark contrast in scientific knowledge and ability in both countries.
Fluge and Mella's first paper was published in 2009. Within only 10 years of trying, and on a budget mostly based on charitable donations, the Norwegian pair will have transformed biomedical research in early stage ME by listening to the patient, and using scientific tests, rather than the British approach of being fattened on psychology research funding only to waste it on theories of functional symptoms based on the mind causing fatigue, that have failed for 30 years.
No matter how hard the spin doctors try, it is what is. Same old, tired, unproven, theory always based on fatigue not on the core universal trait of ME - Orthostatic Intolerance - already explained by autonomic dysfunction, blood flow abnormalities, and low blood volume findings in research years ago.
Still, we see no science in view from the discussions we have read in this 'conference', and so no actual progress with treating the original disease based patients suffering from a crippling, acquired, neuroimmune disease of infectious onset causation who have a myriad of abnormal test results that could now be used to diagnose them on the spot (using ME-ICC not Fukuda or modified Fukuda).
The cause of the academic impotence, is the diagnostic criteria. Fatigue based research will find precisely nothing organic if the 'patient' is diagnosed on subjective self reported symptoms. This is 6th grade stuff here, not University level material!
Disease signs: such as reduced cardiac output on or after exercise, and altered central nervous system tone is far more suitable to select who to research (ME sufferers), rather than tired people. (If someone aged 10 can work this out, why are 50 years old with Phd's unable to process this?).
It's almost as if they want to be remembered in history as keeping patients with ME ill on purpose, by steadfastly refusing to seperate ME from CFS with the psych patients in the fatigue group, and the autoimmune infection patients in the other.
Why is that so hard to comprehend that to research correctly, this needs to be done to make progress? Such a tragic waste of people's lives therefore, who remain sick, with no treatments available.
No MRC funded study has even been produced for ME, of any worth. The research of worth, is privately funded, away from the state (what a surprise again).
It's easy to despair looking at the British denial of ME (on first glance), but then you realise they are the current laughing stock of CFS research globally, so not reflective on the true science. Thank heavens for the Norwegians, Japanese, Americans (at Stanford) and other people not trapped under the hypnotic trance of Marxism influencing health care delivery, influencing decision making of what area is 'best' to study, by excluding the patients with actual signs of neurological and immunological disease.
If we compare the stubbornness of the mind-body theorists inability to evolve with the science Vs the intelligence of Fluge + Mella trying chemotherapy in patients who reported the treatment unexpectedly helped their 'CFS' (leading to a surprising finding of autoimmunity in 'CFS') there is a stark contrast in scientific knowledge and ability in both countries.
Fluge and Mella's first paper was published in 2009. Within only 10 years of trying, and on a budget mostly based on charitable donations, the Norwegian pair will have transformed biomedical research in early stage ME by listening to the patient, and using scientific tests, rather than the British approach of being fattened on psychology research funding only to waste it on theories of functional symptoms based on the mind causing fatigue, that have failed for 30 years.
No matter how hard the spin doctors try, it is what is. Same old, tired, unproven, theory always based on fatigue not on the core universal trait of ME - Orthostatic Intolerance - already explained by autonomic dysfunction, blood flow abnormalities, and low blood volume findings in research years ago.
Still, we see no science in view from the discussions we have read in this 'conference', and so no actual progress with treating the original disease based patients suffering from a crippling, acquired, neuroimmune disease of infectious onset causation who have a myriad of abnormal test results that could now be used to diagnose them on the spot (using ME-ICC not Fukuda or modified Fukuda).
The cause of the academic impotence, is the diagnostic criteria. Fatigue based research will find precisely nothing organic if the 'patient' is diagnosed on subjective self reported symptoms. This is 6th grade stuff here, not University level material!
Disease signs: such as reduced cardiac output on or after exercise, and altered central nervous system tone is far more suitable to select who to research (ME sufferers), rather than tired people. (If someone aged 10 can work this out, why are 50 years old with Phd's unable to process this?).
It's almost as if they want to be remembered in history as keeping patients with ME ill on purpose, by steadfastly refusing to seperate ME from CFS with the psych patients in the fatigue group, and the autoimmune infection patients in the other.
Why is that so hard to comprehend that to research correctly, this needs to be done to make progress? Such a tragic waste of people's lives therefore, who remain sick, with no treatments available.