Long-term sequelae after Ebola virus disease in Bundibugyo, Uganda: a retrospective cohort study

[leokitten]

We've already been discussing for a while here on PR how post-Ebola disease syndrome (PEVDS) basically looks just like ME/CFS and is further evidence of infection triggered immune dysfunction or autoimmunity. Finally there's a publication on the topic in the Lancet:

http://www.ncbi.nlm.nih.gov/m/pubmed/25910637/

And nice summary article by Cort:

http://www.cortjohnson.org/blog/201...romyalgia-the-post-infectious-syndromes-pt-i/

 

[Sidereal]

All them secondary gains and false illness beliefs in Africa...

 

[Denise]

I found this related article and infographic interesting:
http://www.scientificamerican.com/a...ealth-issues-for-ebola-survivors-infographic/

 

[Daffodil]

wasn't there a case of a recovered american doctor who started having blurry vision and was found to have ebola still living in his eye or something?

 

[Denise]

wasn't there a case of a recovered american doctor who started having blurry vision and was found to have ebola still living in his eye or something?

Yes.
http://www.nejm.org/doi/full/10.1056/NEJMoa1500306
http://www.nytimes.com/2015/05/08/health/weeks-after-his-recovery-ebola-lurked-in-a-doctors-eye.html

 

[Never Give Up]

I found this related article and infographic interesting:
http://www.scientificamerican.com/a...ealth-issues-for-ebola-survivors-infographic/

Hmmm, "Perhaps most worryingly, almost all the survivors—96 percent—reported being rejected by their communities after they were released from the hospital."

Conscious, rational worries of contagion aside, I think this is a primal instinct with which the ME/CFS community is well acquainted.

 

[leokitten]

wasn't there a case of a recovered american doctor who started having blurry vision and was found to have ebola still living in his eye or something?

From my understanding what happened to that doctor isn't PEVDS. The eye is an immune privileged area and they've found that even after your immune system clears the virus it can stick around in the eye and in the testes, another immune privileged area.

http://www.popsci.com/why-ebola-lives-so-long-survivors-testicles

 

[Daffodil]

i wonder if the post ebola syndrome might fade with time....as does the post SARS syndrome..

 

[*GG*]

i wonder if the post ebola syndrome might fade with time....as does the post SARS syndrome..

Does it fade away or is it just the publicity/people who fade away?

Or perhaps like Dr Bell found in NY, people adjust to liviing with the illness, they are still very not functional, but you try to roll with the punches!

GG

 

[Daffodil]

Does it fade away or is it just the publicity/people who fade away?

Or perhaps like Dr Bell found in NY, people adjust to liviing with the illness, they are still very not functional, but you try to roll with the punches!

GG

no it actually goes away

 

[Kati]

We've already been discussing for a while here on PR how post-Ebola disease syndrome (PEVDS) basically looks just like ME/CFS and is further evidence of infection triggered immune dysfunction or autoimmunity. Finally there's a publication on the topic in the Lancet:

http://www.ncbi.nlm.nih.gov/m/pubmed/25910637/

And nice summary article by Cort:

http://www.cortjohnson.org/blog/201...romyalgia-the-post-infectious-syndromes-pt-i/

i think this is very relevant to our disease. If only we could reach out to the right people and ask to compare side by side the immune functioning of post-Ebola syndrome and patients with ME. I am very curious.

I wouldn't be surprised that millions get invested to study post-Ebola but not ME.

 

[Scarecrow]

no it actually goes away

In everyone or in a majority of cases? Over what time period? I've been looking for some data on this but haven't been able to find anything. Do you have any good sources?

 

[Bob]

i think this is very relevant to our disease. If only we could reach out to the right people and ask to compare side by side the immune functioning of post-Ebola syndrome and patients with ME. I am very curious.

I wouldn't be surprised that millions get invested to study post-Ebola but not ME.

Dr Lipkin must surely be the researcher to email about this. I've started two emails to him but I abandoned them because I didn't like what i'd written. (I think my brain wasn't working well at the time.) Maybe I'll have another attempt tomorrow. But if anyone else would like to pop an email his way and include links to a couple of relevant articles, that'd be great. If he could get CFS patients as a comparison group onto a study of Ebola, then that could potentially be millions of dollars of CFS research, and it might raise the profile of CFS as an immunological disease.

 

[Daffodil]

In everyone or in a majority of cases? Over what time period? I've been looking for some data on this but haven't been able to find anything. Do you have any good sources?

hi! if you are looking for info about post-SARS, please message me!