Mariah
Senior Member
- Messages
- 120
Hi,
I haven`t been discussing much of my symptoms with fellow M.Eers ever, så everytime when I get a new or worsened symptom (I have the progressive form of ME) I get curious as to how or if others experience the same as me. This time it`s about breathing.
I`m in a spiral downwards maybe the last year or so which won`t seem to stop. And now a symptom which comes or worsens from time to time (seems to always be there to some extent) has worsened with a fury. I have difficulty breathing. Even just sitting, or lying down, can`t seem to resolve it, I have trouble just sitting still. And forget about any activity. It also seems to be directly related to what I would describe as a feeling of a lump in my throat ( a globus sensation some call it). Some would maybe describe is as a feeling of the throat being tightened or inflamed, leaving only a small airway, but I distinctly feel a lump that is "not there". This goes together with my chest muscles feeling really fatigued, pain in the chest and the throat like the pain you get in your throat after running a long distance at high intensity, and the feeling that I can`t get enough air in. In short, this causes me, or at least is a part of, my difficulty breathing. Has anyone else experienced this and have some input on what this could be? I could add that I have had some reflux, but that this has been under control with medication for a long time, so I really doubt that that is the culprit. This is also something that has haunted me from time to time from when I first showed small signs of later being sick, to now. Being out of breath really is a vicious and debilitating symptom.
I haven`t been discussing much of my symptoms with fellow M.Eers ever, så everytime when I get a new or worsened symptom (I have the progressive form of ME) I get curious as to how or if others experience the same as me. This time it`s about breathing.
I`m in a spiral downwards maybe the last year or so which won`t seem to stop. And now a symptom which comes or worsens from time to time (seems to always be there to some extent) has worsened with a fury. I have difficulty breathing. Even just sitting, or lying down, can`t seem to resolve it, I have trouble just sitting still. And forget about any activity. It also seems to be directly related to what I would describe as a feeling of a lump in my throat ( a globus sensation some call it). Some would maybe describe is as a feeling of the throat being tightened or inflamed, leaving only a small airway, but I distinctly feel a lump that is "not there". This goes together with my chest muscles feeling really fatigued, pain in the chest and the throat like the pain you get in your throat after running a long distance at high intensity, and the feeling that I can`t get enough air in. In short, this causes me, or at least is a part of, my difficulty breathing. Has anyone else experienced this and have some input on what this could be? I could add that I have had some reflux, but that this has been under control with medication for a long time, so I really doubt that that is the culprit. This is also something that has haunted me from time to time from when I first showed small signs of later being sick, to now. Being out of breath really is a vicious and debilitating symptom.
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