aimossy
Senior Member
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The #MEAction Network Research Funding Equality Petition has cracked the 3,000 mark and is at 3,036. The USA signatory total is 985. The Global Solidarity signatory total is 2,051.
Myalgic Encephalomyelitis (often referred to as Chronic Fatigue Syndrome or ME/CFS) is a severe neurological disease that affects at least 1 million Americans and leaves half of its victims disabled and unable to work. Many patients are considered at a greater functional impairment than those with congestive heart failure, multiple sclerosis, and end-stage renal disease.
The disease’s annual impact to the US economy is an estimated $24 billion in health care costs, lost wages, and lost productivity. However, at present the U.S. government does not have a research plan in place to mitigate this profound cost to society.
Currently, the U.S. National Institutes of Health (NIH) funds only $5 million per year for research into this disease.
As the only moral response to more than thirty years of official and medical neglect of this illness, we demand that Congress increase NIH research funding to $250 million per year, a level proportionate to the disease’s severity, prevalence and impact.
We, the undersigned patients, doctors, scientists, parents, children, family, friends, caretakers and #MEAllies, demand full and immediate funding equality for ME.
Why is this important?
In order to fuel the research necessary to uncover causes and find effective treatments, we need Congress to fund ME/CFS at a level equivalent to that of other similarly disabling neurological diseases.
With an estimated 17 million patients worldwide, the longstanding neglect of this disease is a global issue. The US has a leading role to play in the hunt for a cure. With this petition we say, the whole world is watching.
As the only moral response to more than thirty years of official and medical neglect of this illness, we demand that Congress increase NIH research funding to $250 million per year, a level proportionate to the disease’s severity, prevalence and impact.
The goal is 50,000 signatures in total and at least 500 signatures from every state.
In order to accomplish this, we will need to recruit the help of able patients and healthy #MEAllies to bring the petition and its message out into the world and into our schools, churches, workplaces; into our local communities.
If you agree with this petition follow this link to sign, there is one for USA people to sign and one for everyone else to sign in solidarity of this.
http://www.meaction.net/funding-equality-petition/
Myalgic Encephalomyelitis (often referred to as Chronic Fatigue Syndrome or ME/CFS) is a severe neurological disease that affects at least 1 million Americans and leaves half of its victims disabled and unable to work. Many patients are considered at a greater functional impairment than those with congestive heart failure, multiple sclerosis, and end-stage renal disease.
The disease’s annual impact to the US economy is an estimated $24 billion in health care costs, lost wages, and lost productivity. However, at present the U.S. government does not have a research plan in place to mitigate this profound cost to society.
Currently, the U.S. National Institutes of Health (NIH) funds only $5 million per year for research into this disease.
As the only moral response to more than thirty years of official and medical neglect of this illness, we demand that Congress increase NIH research funding to $250 million per year, a level proportionate to the disease’s severity, prevalence and impact.
We, the undersigned patients, doctors, scientists, parents, children, family, friends, caretakers and #MEAllies, demand full and immediate funding equality for ME.
Why is this important?
In order to fuel the research necessary to uncover causes and find effective treatments, we need Congress to fund ME/CFS at a level equivalent to that of other similarly disabling neurological diseases.
With an estimated 17 million patients worldwide, the longstanding neglect of this disease is a global issue. The US has a leading role to play in the hunt for a cure. With this petition we say, the whole world is watching.
As the only moral response to more than thirty years of official and medical neglect of this illness, we demand that Congress increase NIH research funding to $250 million per year, a level proportionate to the disease’s severity, prevalence and impact.
The goal is 50,000 signatures in total and at least 500 signatures from every state.
In order to accomplish this, we will need to recruit the help of able patients and healthy #MEAllies to bring the petition and its message out into the world and into our schools, churches, workplaces; into our local communities.
If you agree with this petition follow this link to sign, there is one for USA people to sign and one for everyone else to sign in solidarity of this.
http://www.meaction.net/funding-equality-petition/