minkeygirl
But I Look So Good.
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I have had some of these symptoms for awhile, and I thought they were just weird ME things. But I'm wondering now if they are part of one thing and actually some kind of dysautonomia.
• I do not sweat. This is sort of new. My pits got wet last summer but never really sweat even in 100º heat.
• Intolerant of heat. It's not even that hot, maybe 77º and I have 3 fans blowing on me. If I start to get warm, it feels like it's from my core, the only thing that cools me down is to get in a lukewarm or cool shower. Spray bottle doesn't help. Every 2 hours or so I have to get in the shower. Exhausting.
• I never sit up (haven't for a few years)
• I sit to do anything. Wash dishes, brush teeth etc.
• I'm hypersensitive to light. Practically live in a cave.
• I can feel my heart beat all the time but it doesn't affect my BP.
I DO NOT
• get lightheaded when I stand. (I did get lightheaded this morning for the first time I can remember and drank some Nuun and was fine.)
• fall or pass out
• BP and HR is mostly ok
* I tried POTS test and HR went up right when I stood but when I redid BP at 8 minutes I got an error on my monitor. Been too tired to try it again.
I do take propranolol for the heart beat stuff but that is only about 20 mgs at night so I can sleep.
Please do not get technical on me. I won't understand and my brain will shut down. Basic one, two threes please if that's possible.
Do I need a cardiologist? I have to go to who is in my plan.
Please Tag me so I get an alert.
Thanks
Sorry if this is hard to read with all the paragraphs. I wasn't sure if I should separate the bullet points. let me know if it's a problem.
• I do not sweat. This is sort of new. My pits got wet last summer but never really sweat even in 100º heat.
• Intolerant of heat. It's not even that hot, maybe 77º and I have 3 fans blowing on me. If I start to get warm, it feels like it's from my core, the only thing that cools me down is to get in a lukewarm or cool shower. Spray bottle doesn't help. Every 2 hours or so I have to get in the shower. Exhausting.
• I never sit up (haven't for a few years)
• I sit to do anything. Wash dishes, brush teeth etc.
• I'm hypersensitive to light. Practically live in a cave.
• I can feel my heart beat all the time but it doesn't affect my BP.
I DO NOT
• get lightheaded when I stand. (I did get lightheaded this morning for the first time I can remember and drank some Nuun and was fine.)
• fall or pass out
• BP and HR is mostly ok
* I tried POTS test and HR went up right when I stood but when I redid BP at 8 minutes I got an error on my monitor. Been too tired to try it again.
I do take propranolol for the heart beat stuff but that is only about 20 mgs at night so I can sleep.
Please do not get technical on me. I won't understand and my brain will shut down. Basic one, two threes please if that's possible.
Do I need a cardiologist? I have to go to who is in my plan.
Please Tag me so I get an alert.
Thanks
Sorry if this is hard to read with all the paragraphs. I wasn't sure if I should separate the bullet points. let me know if it's a problem.
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