Our friend Llewellyn King has written a wonderful new blog: A job for a lone Congress member: Speak up for a forgotten disease
There is much more , and is very well written. I tweeted article @ my senators and congress person.
If you would like to do same , you can find names here: https://www.govtrack.us If you click through name you will end up w/ website or some kind of contact where you can find their twitter account if you do not know it.
Also email contact info can be found this way. If you do not tweet you can email a copy of this article to your representatives. Who knows ? Maybe one of them will take up the job !
ETA Since I am in NYS and article mentions Lyndonville I used #LyndonvilleNY Article also brings up Incline Village so if you are in NV maybe good to highlight that. Cheers
ETA If everyone would send to their reps, we could cover them all ! : )
Wanted:
Member of Congress prepared to take up a cause.
Political party affiliation: Unimportant.
Geographic representation: Unimportant.
Fund-raising potential: Minimal.
Reward: Undying gratitude, lavish praise, thanks beyond counting.
Job description: In any way you can, draw attention to a debilitating, life-abducting disease. Work to persuade federal government medical agencies to adequately fund research for a cure.
There is much more , and is very well written. I tweeted article @ my senators and congress person.
If you would like to do same , you can find names here: https://www.govtrack.us If you click through name you will end up w/ website or some kind of contact where you can find their twitter account if you do not know it.
Also email contact info can be found this way. If you do not tweet you can email a copy of this article to your representatives. Who knows ? Maybe one of them will take up the job !
ETA Since I am in NYS and article mentions Lyndonville I used #LyndonvilleNY Article also brings up Incline Village so if you are in NV maybe good to highlight that. Cheers
ETA If everyone would send to their reps, we could cover them all ! : )
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