Outstanding! They've produced a report with some strong recommendations for NICE.
http://www.meassociation.org.uk/2015/05/23959/
Well done, MEA - can't happen fast enough.
Thank you, @charles shepherd!
http://www.meassociation.org.uk/2015/05/23959/
ME Association said:We conclude that CBT in its current delivered form should not be recommended as a primary intervention for people with ME/CFS.
CBT courses, based on the model that abnormal beliefs and behaviours are responsible for maintaining the illness, have no role to play in the management of ME/CFS and increase the risk of symptoms becoming worse.
[...]
We conclude that GET should be withdrawn with immediate effect as a primary intervention for everyone with ME/CFS.
[...]
We consider the current NICE guideline on ME/CFS with regard to illness management recommendations to be in need of considerable amendment and for NHS specialist services and private practitioners to be advised of more appropriate management methods.
We will therefore be preparing a paper on illness management that will better reflect the patient experience using evidence that has been obtained in this report, and in our previous Management Report. This work will also reflect those aspects of the NICE guideline that we feel are supported by patient evidence but have not found their way to delivered patient care.
Well done, MEA - can't happen fast enough.
Thank you, @charles shepherd!