Rebecca2z
Paradise, Ca
- Messages
- 248
- Location
- Paradise Ca
Well Happy Days, the Rituxan had made a big difference in my health. I had 4 rounds of RTX, the last round was on March 15th.
I woke up on April 30th and told my husband, wow I feel better today, Just like that I feel better ! I felt like I could go for a walk in the woods. Which I did and in fact I did a walk through the woods for the next 4 days and have continued to enjoy walking with my husband and dog everyday. I am enjoying being able to do things everyday, I am not wiped out from the day before. This is how a 60 year old should feel, this feels normal.
So it has been 2 and 1/2 weeks of feeling much better. My energy is much improved.
I am not bed ridden anymore, I am up and dressed everyday. I am shopping, hiking, cleaning etc. I am feeling all the things I felt from the steroids I wrote about in prior posts. I am able to do a couple of things in one day, I am tired after doing them but I find if I kick back for an hour I am ready to go again. The steroids did give me a much stronger feeling of renewed health but the way I feel now is very close.
I am able to eat without the excruciating pain and fullness. I am able to swallow. I still find I can only eat small amounts but I am not in pain after.
The RTX has had the biggest effect on my fatigue and over all strength. I can honestly say I am WAY BETTER, I don't have the heavy horrendous fatigue and my mental clarity is improved ( although this was better on the steroids) . Everyone around me is thrilled and in fact my nurses have asked if I am getting sol-u-medrol and decradron again. (The infusion center has called me their little miracle !)
It has only been 2 & 1/2 weeks of feeling better, I would expect to feel even more benefits in the coming weeks but if I don't this is ok, more than ok, IT IS GREAT. This is so much better, I feel like I want to do things again. We have planned a trip to the coast for 3 days, something I cloud not have done before.
We are checking my B & T cell levels and will use that as a guide for when I get more RTX.
I was so hoping I could report to you something positive and was worried the RTX wasn't going to do anything but it really has changed my life.
I worry this will wear off or won't work down the road but for now I am enjoying
life again. I am still on a feeding tube but hope to be able to cut that back to 5 days a week and maybe get off it for good.
I hope this can help others. I would for sure do RTX again, I am not perfect but I am so so much happier with living like this !
I woke up on April 30th and told my husband, wow I feel better today, Just like that I feel better ! I felt like I could go for a walk in the woods. Which I did and in fact I did a walk through the woods for the next 4 days and have continued to enjoy walking with my husband and dog everyday. I am enjoying being able to do things everyday, I am not wiped out from the day before. This is how a 60 year old should feel, this feels normal.
So it has been 2 and 1/2 weeks of feeling much better. My energy is much improved.
I am not bed ridden anymore, I am up and dressed everyday. I am shopping, hiking, cleaning etc. I am feeling all the things I felt from the steroids I wrote about in prior posts. I am able to do a couple of things in one day, I am tired after doing them but I find if I kick back for an hour I am ready to go again. The steroids did give me a much stronger feeling of renewed health but the way I feel now is very close.
I am able to eat without the excruciating pain and fullness. I am able to swallow. I still find I can only eat small amounts but I am not in pain after.
The RTX has had the biggest effect on my fatigue and over all strength. I can honestly say I am WAY BETTER, I don't have the heavy horrendous fatigue and my mental clarity is improved ( although this was better on the steroids) . Everyone around me is thrilled and in fact my nurses have asked if I am getting sol-u-medrol and decradron again. (The infusion center has called me their little miracle !)
It has only been 2 & 1/2 weeks of feeling better, I would expect to feel even more benefits in the coming weeks but if I don't this is ok, more than ok, IT IS GREAT. This is so much better, I feel like I want to do things again. We have planned a trip to the coast for 3 days, something I cloud not have done before.
We are checking my B & T cell levels and will use that as a guide for when I get more RTX.
I was so hoping I could report to you something positive and was worried the RTX wasn't going to do anything but it really has changed my life.
I worry this will wear off or won't work down the road but for now I am enjoying
life again. I am still on a feeding tube but hope to be able to cut that back to 5 days a week and maybe get off it for good.
I hope this can help others. I would for sure do RTX again, I am not perfect but I am so so much happier with living like this !