Michelle
Decennial ME/CFS patient
- Messages
- 172
- Location
- Portland, OR
I've been a member here for a long time but don't get a chance to post much because I'm generally too sick and take way too long to process information anymore. But thank you. Thank you so much for posting this, Parvofighter. And you too, Advocate, for posting the link to the MedPage Today article. I'm trying not to get too excited yet about XMRV. I keep repeating to myself they have not yet proven that XMRV causes ME/CFS like it were a mantra. But...damn. Reading that it appears to be replicating in the GI tract and reproductive organs is just freakin' fascinating.
I started getting sick when I was 10-11. It wasn't too severe (lots of respiratory infections) but by 12 I had IBS. I got very ill when I had surgery 11 years ago and had a GI infection. Had another nasty GI infection 6 years ago and have been in horrible pain since. I've had unusual UTIs over the last several years as well as pain in my lower right abdomen for which my doctor wants me to get a laproscopy. I had blood clots in my lungs three years ago (for which I'm now on Coumadin) and they have no idea why. For that pain in my lower right abdomen they put me on progestrone-only birth control. I haven't had a good day since, except when I first started DHEA (but that only lasted for a month and a half).
I'm rambling about a bunch of possibly unconnected items. It's too easy to see my symptoms through this new XMRV lens. But...oh, could it really be possible that this new lens is the right one? Sigh. Only time and research will tell.
They have not yet proven that XMRV causes ME/CFS ...
I started getting sick when I was 10-11. It wasn't too severe (lots of respiratory infections) but by 12 I had IBS. I got very ill when I had surgery 11 years ago and had a GI infection. Had another nasty GI infection 6 years ago and have been in horrible pain since. I've had unusual UTIs over the last several years as well as pain in my lower right abdomen for which my doctor wants me to get a laproscopy. I had blood clots in my lungs three years ago (for which I'm now on Coumadin) and they have no idea why. For that pain in my lower right abdomen they put me on progestrone-only birth control. I haven't had a good day since, except when I first started DHEA (but that only lasted for a month and a half).
I'm rambling about a bunch of possibly unconnected items. It's too easy to see my symptoms through this new XMRV lens. But...oh, could it really be possible that this new lens is the right one? Sigh. Only time and research will tell.
They have not yet proven that XMRV causes ME/CFS ...