I know that I feel faint when I feel hot, but I was wondering if maybe if it goes the other way too, that I am feeling hot because I feel faint.
Does anyone know? It never comes up in the list of symptoms of NMH, but that doesn't mean for some people it isn't.
I don't think I'd say that I ever feel "hot" as part of my NMH symptoms. As you said, it's usually the other way around, e.g., when I get overheated (either from too much moving around/exertion or from the temperature) then that causes NMH symptoms for me.
I do sometimes get a sort of "cold sweat" as one of my presyncope (pre-fainting) symptoms. But that's not the same as feeling hot, is it?
For what it's worth, I've never actually fainted other than on the tilt table test. I just get all the presyncope symptoms.
I hope this is helpful. As DawnMarie said, there are ME/SEID patients who have temperature regulation problems. It could be due to factors other than NMH or other forms of orthostatic intolerance.