Hi everyone,
I've had ME / CFS for just over ten years now and have got myself involved in many support groups and charity meetings etc. While I've always believed I have a form of ME I can't help but notice differences to most people.
My main symptoms are digestive problems, brain fog / cognitive problems and fatigue. All of which seems very common.
However my digestive problems are mainly upper GI and are generally based around extreme hunger and having to eat all the time. I also find it very hard to feel full. I understand most people with ME find it difficult to eat much and often feel full.
I also have no muscle or joint pain and no muscle weakness. Something which I understand people often struggle with. I can do strength exercises reasonably well considering how ill I feel and it's my cognitive symptoms that get worse and stop me before my muscle energy.
I also had my B12 symptoms checked just recently and they were actually quite high at 652 (ref 191 - 663). I know a lot of people have low B12.
I know there obviously isn't a diagnostic test yet that can be done to confirm ME, though I understand there are markers that are commonly high or low in people with ME, B12 being one. Are there any other tests I could have done by a doctor or specialist to point towards an ME diagnosis. C reactive protein? And immune markers?
Also does anyone know if a high B12 reading rules out hypochlorhydria?
Thanks in advance.
I've had ME / CFS for just over ten years now and have got myself involved in many support groups and charity meetings etc. While I've always believed I have a form of ME I can't help but notice differences to most people.
My main symptoms are digestive problems, brain fog / cognitive problems and fatigue. All of which seems very common.
However my digestive problems are mainly upper GI and are generally based around extreme hunger and having to eat all the time. I also find it very hard to feel full. I understand most people with ME find it difficult to eat much and often feel full.
I also have no muscle or joint pain and no muscle weakness. Something which I understand people often struggle with. I can do strength exercises reasonably well considering how ill I feel and it's my cognitive symptoms that get worse and stop me before my muscle energy.
I also had my B12 symptoms checked just recently and they were actually quite high at 652 (ref 191 - 663). I know a lot of people have low B12.
I know there obviously isn't a diagnostic test yet that can be done to confirm ME, though I understand there are markers that are commonly high or low in people with ME, B12 being one. Are there any other tests I could have done by a doctor or specialist to point towards an ME diagnosis. C reactive protein? And immune markers?
Also does anyone know if a high B12 reading rules out hypochlorhydria?
Thanks in advance.