Nielk
Senior Member
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The history part of the report starting p27 states that ME/CFS is an umbrella term including the two separate terms ME and CFS.
They state that there ere are criteria for ME like ICC, Ramsey’s and Hyde. Different criteria describe CFS, like Empiric, Fukuda and homes. Whereas the CCC uses the umbrella ME/CFS term.
However, they conclude that there remains disagreement as to whether ME and CFS are separate conditions or are similar enough to belong under an umbrella term such as ME/CFS
Are the two terms describing two separate diseases? Let’s look at the history of both. M.E. in Great Britain and CFS in the U.S.
Great Britain:
Outbreak in the Royal Free Hospital – 1955
Symptoms described: tender lymph nodes, sore throat, malaise, signs of encephalomyelitis
Name given – Myalgic Encephalomyelitis
US
Outbreak at Incline Village – 1984
Symptom described: sore throat, lymph node pain, myalgia, headache, muscle fatigue
Name given – Chronic Fatigue Syndrome
The CDC was aware at the time of the Incline outbreak that this disease looked just like Ramsey’s ME yet gave it the name Chronic Fatigue syndrome.
They have since tried to separate CFS from ME. They have done this with the name and with the different criteria like Holmes and Fukuda. They have tried to construct a new entity by broadening the criteria of this disease and by branding it a fatiguing syndrome.
Now, to further confuse us, they are re-branding again with an even broader, simpler criteria and re-naming it once again to Systemic Exertion Intolerance Disease (SEID)
The one million dollar question is: Which disease is SEID?
They state that there ere are criteria for ME like ICC, Ramsey’s and Hyde. Different criteria describe CFS, like Empiric, Fukuda and homes. Whereas the CCC uses the umbrella ME/CFS term.
However, they conclude that there remains disagreement as to whether ME and CFS are separate conditions or are similar enough to belong under an umbrella term such as ME/CFS
Are the two terms describing two separate diseases? Let’s look at the history of both. M.E. in Great Britain and CFS in the U.S.
Great Britain:
Outbreak in the Royal Free Hospital – 1955
Symptoms described: tender lymph nodes, sore throat, malaise, signs of encephalomyelitis
Name given – Myalgic Encephalomyelitis
US
Outbreak at Incline Village – 1984
Symptom described: sore throat, lymph node pain, myalgia, headache, muscle fatigue
Name given – Chronic Fatigue Syndrome
The CDC was aware at the time of the Incline outbreak that this disease looked just like Ramsey’s ME yet gave it the name Chronic Fatigue syndrome.
They have since tried to separate CFS from ME. They have done this with the name and with the different criteria like Holmes and Fukuda. They have tried to construct a new entity by broadening the criteria of this disease and by branding it a fatiguing syndrome.
Now, to further confuse us, they are re-branding again with an even broader, simpler criteria and re-naming it once again to Systemic Exertion Intolerance Disease (SEID)
The one million dollar question is: Which disease is SEID?