slayadragon
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In this blog, Professor Leonard Jason proposes that rather than just adopting SEID, the government should take into consideration patient input when deciding on what name to use.
http://blog.oup.com/2015/02/disease-name-chronic-fatigue-syndrome-me/
Obviously, many patients favor the name ME.
But (since the IOM report questions whether ME is appropriate), I think it would be useful to come up with alternative names that patients might also find acceptable.
For instance, many people are now talking about the idea that "Ramsay's Disease" might be an acceptable name.
Hopefully if we can come up with alternative names that are better, the government will consider adopting them.
What other names are worth considering?
Thanks for your help.
Best,
Lisa Petrison
http://blog.oup.com/2015/02/disease-name-chronic-fatigue-syndrome-me/
Obviously, many patients favor the name ME.
But (since the IOM report questions whether ME is appropriate), I think it would be useful to come up with alternative names that patients might also find acceptable.
For instance, many people are now talking about the idea that "Ramsay's Disease" might be an acceptable name.
Hopefully if we can come up with alternative names that are better, the government will consider adopting them.
What other names are worth considering?
Thanks for your help.
Best,
Lisa Petrison