Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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The exercises don't work if you have ME: the PEM pretty well destroys any benefits that normal OI patients would get from exercise training. Your doctor might be able to help with meds, but fluids and electrolytes, support socks (if you can get them on), and some supplements can also help.I am told there are some simple exercises you can do to improve POTS.
Is anyone familiar with these exercises or where I can find out about them?
Tilt training is supposed to help. I can't vouch for it - it's on my to do list
Note: this is very unpleasant. Don't do it on your own if you think there is any possibility that you might faint.
- maintain that position for up to 30 minutes
- try to do two sessions each day.