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Hey all. So I posted recently about seeing KDM and have since got results/treatment plan back. I have a few questions but generally I'd really appreciate any advice/comments/warnings on this proposed treatment plan. I know a couple of other people here seeing KDM so would be interested to hear your progress as well.
The conclusion based on my lab work was as follows:
My IL-8 was at 7353 pg/mL (reference 0-15) which seems a little high to me. It's great to get some form of diagnosis though, as my previous thread mentioned Breakspear failed to diagnose Lyme three years ago after a positive MELISA (albeit with negative serology). I find it almost surreal that he predicted Mycoplasma after I mentioned jaw problems and it showed up on PCR.
The treatment plan:
Questions:
I believe some patients are also using herbal antibiotics, is this something that can be done simultaneously or is it like a backup if the traditional antibiotics fail?
Many thanks
The conclusion based on my lab work was as follows:
This patient suffers from "Late Stage Lyme Disease" and clearly has a Th1 switch towards Th2/Th17 (risk of auto-immune disease increased). The serum levels of selected pro-inflammatory cytokines are very high. Tularemia is a co-infection of Borrelia (tick bites). He also has an active mycoplasma infection. We do not know which subspecies it is, but it might have a relationship with his TMJ symptoms.
My IL-8 was at 7353 pg/mL (reference 0-15) which seems a little high to me. It's great to get some form of diagnosis though, as my previous thread mentioned Breakspear failed to diagnose Lyme three years ago after a positive MELISA (albeit with negative serology). I find it almost surreal that he predicted Mycoplasma after I mentioned jaw problems and it showed up on PCR.
The treatment plan:
Week 1-4
Ciprofloxacin 500mg twice a day
Doxycycline 200mg once a day
Week 5-10
Rocephin (intravenous) 45 minutes 5 days per week
Week 11-16
Azithromycin (intravenous) 3 hours 3 days per week
Week 1-16
Hydroxycobalamin (intramuscular) 10mg three times per week
Hydroxycobalamin (sublingual) 1 sublingual twice a day
Vitamin C 2g per day
Omega 3 2 twice a day
Choline-DHA 2 per day
D-Cure 25,000 IE/ampul 1 per week
4ME 1 injection per day
DHEA 20mg per day
Questions:
- 4ME - worth taking? I've never heard of it until now and wonder how strong the evidence is for it (given it's pretty expensive)
- DHEA - sounds kind of sketchy according to here, what is the point of this?
- How important is it to have I.M vs sublingual B12, I've heard there is evidence showing that the difference is negligible but not too sure
- Oral antibiotics, would be interested to know the best way to source these, how have people based in the UK gone about acquiring them
I believe some patients are also using herbal antibiotics, is this something that can be done simultaneously or is it like a backup if the traditional antibiotics fail?
Many thanks
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