Woke up October 1992 extremely dizzy nausea vomiting with a low grade fever in bed all day.
Felt like I was getting better then everything went downhill.
Would awaken every morning 5am like an internal clock went off.
Extreme weakness and malaise with very little appetite.
By 12 noon symptoms start to get slightly better
Every morning driving myself barely to ER where they did blood hydrated me, stool samples and released.
Finally no appetite at all and losing weight quickly
First endoscopy showed some inflammation stomach
By December hospitalized
I had a thick coating on my tongue that I would have to scrape off what I now know was candida.
Nuclear scan bowel shows inflammation terminal ileum(end of small intestine)
Colonoscopy shows sever inflammation in entire colon and huge amount of inflammation at terminal ileum and ileocecal valve.
Dr. Diagnoses me with Chrohn's disease and puts me on heavy iv steroids.
Neurological symptoms now get 1000X worse
Arms and legs jerk uncontrollably(myoclonus) muscles twitching in my face, legs, arms and even stomach muscles-yet all electrolytes in blood normal
Dr. thinks I have ALS
After one month in hospital with no improvement they tell my wife it is some type of rare cancer and I am not going to make it.
Checked myself out barely being able to walk and went home got hospital bed in dining room.
Lyme disease Dr. heard about me somehow and went to his office.
He noticed muscle twitching and pallor and especially fungus on my tongue.
He said I was too sick to start antibiotic treatment.
A miracle happened!!! He gave me a drug diflucan and within 2 days I was out of bed and finally walking and appetite returning. That damn fungus was making me very sick.
After massive amounts of iv, Intramuscular injections and oral antibiotics I still did not feel any better. I actually felt worse on antibiotics. Not typical herxheimers. Just sick. Finally gave up and have not tested positive for lyme in years. Initial tests were sometimes positive, sometimes negative and sometimes equivocal. Not sure if I ever had lyme disease at all
Fast forward now 22 years later. Still sick. From what I have been able to read now I could have possibly had an enterovirus attacking me.
I had drank from a contaminated water source shortly before getting sick. You know one of those roadside wells in the mountains.
I contacted the town and they tested and condemned the well. It was extremely high in choliform and highly polluted water. They sent me a letter of apology.
I now have what looks like just about every symptom associated with me/cfs. My last blood showed a natural killer cell function of 2.
I still to this day on recent biopsy of the stomach show inflammation in various regions. With the night sweats I get and low grade fevers on and off I feel I still have some strange virus attacking me.
I have started antivirals now and am hoping over time to get some relief. Will keep you posted if any improvement.
If any of you have heavy yeast on tongue and can't eat sugars without feeling a lot worse I suggest you talk to your Dr. about antifungals because to this day that is the only drug that made a difference in my overall condition.
Keep you posted of any improvement on antivirals.
Thanks,
Sick2long
Felt like I was getting better then everything went downhill.
Would awaken every morning 5am like an internal clock went off.
Extreme weakness and malaise with very little appetite.
By 12 noon symptoms start to get slightly better
Every morning driving myself barely to ER where they did blood hydrated me, stool samples and released.
Finally no appetite at all and losing weight quickly
First endoscopy showed some inflammation stomach
By December hospitalized
I had a thick coating on my tongue that I would have to scrape off what I now know was candida.
Nuclear scan bowel shows inflammation terminal ileum(end of small intestine)
Colonoscopy shows sever inflammation in entire colon and huge amount of inflammation at terminal ileum and ileocecal valve.
Dr. Diagnoses me with Chrohn's disease and puts me on heavy iv steroids.
Neurological symptoms now get 1000X worse
Arms and legs jerk uncontrollably(myoclonus) muscles twitching in my face, legs, arms and even stomach muscles-yet all electrolytes in blood normal
Dr. thinks I have ALS
After one month in hospital with no improvement they tell my wife it is some type of rare cancer and I am not going to make it.
Checked myself out barely being able to walk and went home got hospital bed in dining room.
Lyme disease Dr. heard about me somehow and went to his office.
He noticed muscle twitching and pallor and especially fungus on my tongue.
He said I was too sick to start antibiotic treatment.
A miracle happened!!! He gave me a drug diflucan and within 2 days I was out of bed and finally walking and appetite returning. That damn fungus was making me very sick.
After massive amounts of iv, Intramuscular injections and oral antibiotics I still did not feel any better. I actually felt worse on antibiotics. Not typical herxheimers. Just sick. Finally gave up and have not tested positive for lyme in years. Initial tests were sometimes positive, sometimes negative and sometimes equivocal. Not sure if I ever had lyme disease at all
Fast forward now 22 years later. Still sick. From what I have been able to read now I could have possibly had an enterovirus attacking me.
I had drank from a contaminated water source shortly before getting sick. You know one of those roadside wells in the mountains.
I contacted the town and they tested and condemned the well. It was extremely high in choliform and highly polluted water. They sent me a letter of apology.
I now have what looks like just about every symptom associated with me/cfs. My last blood showed a natural killer cell function of 2.
I still to this day on recent biopsy of the stomach show inflammation in various regions. With the night sweats I get and low grade fevers on and off I feel I still have some strange virus attacking me.
I have started antivirals now and am hoping over time to get some relief. Will keep you posted if any improvement.
If any of you have heavy yeast on tongue and can't eat sugars without feeling a lot worse I suggest you talk to your Dr. about antifungals because to this day that is the only drug that made a difference in my overall condition.
Keep you posted of any improvement on antivirals.
Thanks,
Sick2long