Marco
Grrrrrrr!
- Messages
- 2,386
- Location
- Near Cognac, France
I fully agree that there are currently no alternative (apart from CBT/GET) with sufficient evidence to warrant inclusion in any guidance for ME/CFS treatment or even to be considered at the discretion of individual physicians? So called 'ME experts' really need to get their act together if they expect anything to change.
I also agree that, in the absence of knowing the heterogeneity of the population or what the various pathologies might be, that any blanket prescription (of CBT/GET) is unwarranted especially given that subjective symptom change doesn't appear to lead to objective functional improvement.
I also agree with the sentiment that the limiting of further investigation post a ME/CFS diagnosis is unwarranted/reckless.
I'll give one example. Fibromyalgia is a closely related and frequently 'co-morbid' condition to ME/CFS which some would argue is another example of 'medically unexplained symptoms' or a psychosomatic disorder. Recent studies (5 possibly 6 from various labs) have now shown objective evidence of small fibre peripheral neuropathy in around 50% of fibro patients which could very well be driving their central pain. Whether this represents misdiagnosis, co-morbidity or is a central driver of fibro is up to the scientists.
The point being is that it can be objectively measured, has known causes and can be treated.
I also agree that, in the absence of knowing the heterogeneity of the population or what the various pathologies might be, that any blanket prescription (of CBT/GET) is unwarranted especially given that subjective symptom change doesn't appear to lead to objective functional improvement.
I also agree with the sentiment that the limiting of further investigation post a ME/CFS diagnosis is unwarranted/reckless.
I'll give one example. Fibromyalgia is a closely related and frequently 'co-morbid' condition to ME/CFS which some would argue is another example of 'medically unexplained symptoms' or a psychosomatic disorder. Recent studies (5 possibly 6 from various labs) have now shown objective evidence of small fibre peripheral neuropathy in around 50% of fibro patients which could very well be driving their central pain. Whether this represents misdiagnosis, co-morbidity or is a central driver of fibro is up to the scientists.
The point being is that it can be objectively measured, has known causes and can be treated.
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