• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Group interventions encouraging CFS patients to increase activity shows modest result

Dolphin

Senior Member
Messages
17,567
Published Letter "Group interventions based around encouraging CFS patients to increase activity levels have shown modest results"

I had a letter published:
"Group interventions based around encouraging CFS patients to increase activity levels have shown modest results"
http://iacfsme.org/LinkClick.aspx?link=396&tabid=393
or
http://iacfsme.org/Portals/0/pdf/Kindlon Letter - vol17 n3.pdf

In response to:
A pilot study of the process of change in a group Chronic Fatigue Syndrome management programme.
Bulletin of the IACFS/ME. 2009;17(2):53-68

which might be of interest to some if they want to ever want to quote something in the literature on the issue.
(Unfortunately letters are restricted to 400 words and 5 references)

[With the Journal of Chronic Fatigue Syndrome no longer operating, people could consider submitting material they might have submitted to the JoCFS, to the Bulletin of the IACFS/ME. Instructions are at:
http://iacfsme.org/BulletinArchives/tabid/309/Default.aspx ]
 

CBS

Senior Member
Messages
1,522
Thanks Tom. Both for the info on getting papers to the IACFS/ME and for a well reasoned paper on GET and CBT.

Shane
 

Dolphin

Senior Member
Messages
17,567
Thanks Tom. Both for the info on getting papers to the IACFS/ME and for a well reasoned paper on GET and CBT.

Shane
Thanks Shane. It was the first letter they had published. It was a pain in that I did a draft (hadn't submitted it) and they changed the rules to 400 words and 5 references. So couldn't make all the points I want to make.
 
T

thefreeprisoner

Guest
:Sign Good one:

Thanks Tom! A big pat on the back.

Thank God my doctor mentioned pacing and the Envelope theory to me rather than CBT and GET 6 years ago when I got my first bout of M.E. otherwise I never would have been able to get married. Or would have got married in a wheelchair and would have had to forgo the honeymoon.

Now there's been a lot more research it has helped me tremendously with my second bout.

-Rachel xx
 

Dolphin

Senior Member
Messages
17,567
That's great you wrote a letter TomK. Group interventions on us is just a tad bit ridiculous! :cool:
Thanks teejkay. That's all people get on the public health system in "specialist" ME/CFS clinics in some parts of the UK and in Belgium.