starryeyes
Senior Member
- Messages
- 1,558
- Location
- Bay Area, California
Thank you vdt.
I love your field of poppies avatar.
I love your field of poppies avatar.
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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My good friend is in this. I know from my own chronic illness how debilitating this can be. I am fortunate to have the energy I have. If you don't know much about this, please watch. They deserve our compassion at the very least.
Thank you for posting this. It is well done and I have reposted because as we know, people need to have a deeper understanding for what this does to people. Sending prayers.
Thank you Gracenote. That means a lot to me. :Retro smile:
to all of you.
teej
Thanks for your thoughts. The gal in the wheelchair is me on a good day. It's funny because in the past I've joked that I'm the Poster Child for CFS.
Before I got that wheelchair I used to have to crawl from my inflatable bed on the floor to the bathroom and kitchen for days when I had pushed too much because my pain gets so intense in my legs and ankles I cannot bear my own weight. I inherited my grandmother's wheelchair when she died a few years ago and I've used it when needed ever since.
That wheelchair is a blessing but I hate being in so much pain I can't even stand or walk on my own two feet. I'm now trying very hard not to push through my symptoms which means I'm bedridden 95% of the time, and I use a cane when I walk anywhere but I haven't been needing the wheelchair much since I've stopped pushing myself like I once did. My goal is to try to stay out of it but it's nice to know it's there when I need it.