Great, many thanks Ema.
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Great, many thanks Ema.
For those who have been diagnosed with Lyme disease I'm curious what you think of this article. I cant find the publish date but there is a revised date of 1/2013. I am confused right now on the right course of action regarding possible chronic Lyme (if there is such a thing). I read comments that testing really is not that reliable in dxing Lyme but the tests are very expensive. But the 'system' seems to require more testing. Then it is not clear the best course of treatment. Just confused as to how to plan my next steps with this new info (CD57 indicates Lyme).
http://www.quackwatch.com/01QuackeryRelatedTopics/lyme.html
Not necessarily. Orals can be very effective and carry fewer risks than having a port installed. It all depends on the response to the meds.Are IV antibiotics to be preferred over oral abx for treatment in late-stage Lyme?
Hi roxie60,
So sorry you're having to deal with this. It's a long and complicated road, for sure.
Regarding Quackwatch: this is not the first time I have found this site to be misinformed and biased. Just my opinion, of course. Any time I come across something like this (copied from middle of the article):
the drug-seeking behaviors of self-described chronic Lyme patients
All my red flags get raised. I think this would be more accurate, and less indicative of bias, if it said "health-seeking behaviors" or "cure-seeking behaviors." To me, it's a huge glimpse of a personal agenda that has nothing to do with my health. Or protection.
I'd much rather see you reading something like this:
http://www.dearpharmacist.com/2013/06/11/lyme-disease-and-bartonella-more-common-than-you-think/
Again, only my opinion. As an always-researching cootie carrier!
Sending you lots of healing vibrations, roxie!
I was just tested last week for Lyme. My Doctor ordered sent the blood work to IGENEX Labs in Palo Alto California for test # 5085 New Western Regional Complete Co-infection Panel which tests for:
- Babesia duncani, IgG& IgM, Babesia FISH, HME IgG & IgM, HGA IgG & IgM, Baratonella IgG & IgM, Bartonella FISH
- Wise to do as this test as many coinfections mimic lyme, and many ticks that carry lyme also carry multiple other coinfections.
- IGeneX Cost: $780
I was also tested for the Western Lyme Blot IgM (#188) and Lyme Western Blot IgG (#189) for a total cost of $980.00. I will be posting a link to 45 minute video by Dr Richard Horowitz who says the co-infections are worse than the Lyme. You can actually have co-infections and no Lyme Disease. It is the co-infections that are causinmg all my pain. I heard from at least 20 people on a Lyme website that have the same chronic pain that I do. My Doctor says that even without the testing that my symptoms are enough of a clinical diagnosis. I*f so, I have had Lyme for at least ten years so it is chronic. I cant wait to get the results.
Sorry to hear about this, I was thinking that the Lyme is why your pain is so bad upon first reading this, I see you think the same thing also. Hope you get better soon!
GG
@Xandoff Where do you think you caught this? Where you live now?