Further to what I have already posted, maybe some can relate to what I post here.
For the last few months I have had burning/dry eyes, burning mouth and tongue, ringing in the ears, an aversion to bright light, severe muscle pain in my chest and right arm and some sort of sweet hot sickly smell in my nose .... I have read the term 'cat urine smell' used in this forum by others. I also have terrible insomnia.
From the research it seems that long term CFS results in brain damage, and as you may now know I believe that this is a result of hydrogen sulphide poisoning ...
https://www.health.ny.gov/environmental/chemicals/hydrogen_sulfide/ this May be of interest to you.
I definitely believe the gut is the main issue, and that low e-coil makes the condition worse as e-coil ferments simple sugars and produce catalase which helps to protect the gut from hydrogen peroxide damage and removes food for the hydrogen sulphide production. I now have low e-coli, and very high enterococcus, the strep has been taken out of my bowel .....
I am now going to propose that the respiratory tract, particularly the nose, is the access that causes the brain issues, so I have conducted a self experiment.
I mixed some xylitol and water and started putting it up my nose 4+ times per day. I also mixed a tsp of xylitol with a clove of garlic and a similar piece of ginger in water and gargled it every night before bed, I also removed all carbs from my diet and chewed xylitol gum.
I believe this protocol has suppressed the nasty bacteria and certainly reduced the systemic hydrogen sulphide production .... Almost immediately the burning stopped and the nasal smell went, after 2 days the muscle cramps had significantly reduced and I have been sleeping like a log ...
Not a particularly nice protocol, but it has further proved that for someone like me, in the early stages, it may be much easier to prove a cause. I believe that CFS is possible without gut problems ... Particularly for males ... A diagnosis of depression in males, may in fact be CFS .... Hydrogen sulphide poisoning from bacteria in the nasal passage and respiratory tract .....
I believe there is a xylitol nasal spray available off the shelf.