kermit frogsquire
Senior Member
- Messages
- 125
She promises a success rate of 97% to her patients but she also seems to believe that ME is time limited, even with a child who deteriorates she claims to have successfully treated their CFS but then says they must have a dissociative disorder due to the stress of being ill. They she tries to get the local CAHMS doctors to diagnose PRS and have the child placed in a psychiatric unit. But this counts are recovered for her since she declares that she has successfully treated their CFS (yes with a little advice, colouring charts and a couple of phone calls) even when they are still ill with the same symptoms. No medical examination is necessary for this either!
It's terrible and I didn't say she was right. Please read what I wrote. But the sad fact is that Esther Crawley sits on the MRC (Medical Research Council) and it is also a sad fact that her "overdiagnosis" view of the disease is the one used for diagnosis of ME in UK specialist centres - the very centres that will be used for UK research. Will it help to give 4.7% of the population rituximab? What results will we get out of that? As I keep saying, we need to subgroup first to prevent research being done on the wrong patients.