Share Your Experience: Types of Exercise That Work With ME / CFS?

[Sushi]

Thanks for the suggestions.

I didn't self diagnose - I was told this from a discussion with my specialist M.E doctor - he sees a lot of patients and we discussed my neurological problems which he felt were definitely seizures of some kind - in his long experience these are usually caused by inflammation in the brain.

He has done extensive testing to find the causes underlying my illness - I am not guessing at anything, or self treating.

Just noticed you last question/statement - the kind of Doctor he is is an internationally renowned M.E doctor who helped to write the ICC which I fit exactly. Perhaps we can move on now from casting aspersions on my diagnosis and doctor.

@pone

And, though you don't have your test results yet, when you get them you will find that he has tested for inflammation in about 4 different ways.

Sushi

 

[pemone]

I didn't self diagnose - I was told this from a discussion with my specialist M.E doctor - he sees a lot of patients and we discussed my neurological problems which he felt were definitely seizures of some kind - in his long experience these are usually caused by inflammation in the brain.

He has done extensive testing to find the causes underlying my illness - I am not guessing at anything, or self treating.

And I said the same thing as well. It sure does sound like inflammation.

The proof is in the clinical markers. I'm just being a purist. Demand facts to back up the symptom.

Just noticed you last question/statement - the kind of Doctor he is is an internationally renowned M.E doctor who helped to write the ICC which I fit exactly. Perhaps we can move on now from casting aspersions on my diagnosis and doctor.

I'm sure the doctor has his method.

I don't see the harm in checking for standard clinical markers of inflammation, and I also don't understand why he wouldn't check.

 

[pemone]

@pone

And, though you don't have your test results yet, when you get them you will find that he has tested for inflammation in about 4 different ways.

Sushi

And they thought the same thing about me. And the tests showed something different.

That's why it's important to do the testing.

 

[Little Bluestem]

I like my rebounder. It is said to be very efficient exercise. I do just the gentle bouncing where the feet do not leave the surface of the rebounder.

For some odd reason, if I let my arms hang down at my sides, my heart rate goes up quickly. If I bend my elbows so that my lower arms are horizontal in front of me (and I can see my pulse oximeter at all times), the heart rate does not go high as quickly.

I also do some stretching. Simple ones don't effect my heart rate much. The ones for my back, which involve my whole body, will put my h.r. up. I have to do sets of 2 or 3 with ample rest between.