- Messages
- 44
There was discussion on ME and CFS groups about CFSRF getting into bed with Peter White when they announced this project. Some patients who had supported the CRSRF contacted them at the time and stopped making donations to them.
The most likely place it was discussed in the forum was under the PACE discussions.
I've had dealing with AFME since it started and have no confidence in it or the trustees, given my personal experience. The rot is there at the top. Unless all the old trustees are voted out and replaced by people with a genuine belief in ME as medical illness without all the psychobabble then they will never change.
But CFSRF raised £230,000, which is an amazing amount of money, from its donors so if people opted out there were plenty who stayed in to support this project. Difficult to see why given the White connection.
If the trustees of AfME are in favour of psychobabble why is the organisation spending so much time funding and promoting biomedical research?