Cheshire
Senior Member
- Messages
- 1,129
So stimulating!
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Yes, I agree. It was so candid, full of information and actually uplifting. I hope many of you have been able to listen in.So stimulating!
He's written about this recently:I'm confused by Llewellyn's concept of a "single person" in Washington. Is he suggesting we hire a lobbyist or get a new Congressperson to adopt us as their pet project? A lobbyist costs beaucoup $$$$$. Or do we have to hire a lobbyist to talk to the Congress people to identify which one may want to adopt us? Llewellyn said the window of opportunity is at the next election, which is Nov. 4, 2014, so we have some time.
'Just another typical ME patient' ROFL
He's written about this recently:
http://forums.phoenixrising.me/inde...ngs-me-cfs-manifesto.29979/page-2#post-462470
If I remember correctly, he's suggesting that the ME/CFS community crowdfund to pay for a professional lobbyist to be situated in Washington for a year. Or longer if we can raise the funds.