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May 12: Jen Brea Thrive Show Special

Firestormm

Senior Member
Messages
5,055
Location
Cornwall England
event_theme.jpg



Join us on Monday, May 12 at 3PM Eastern Time for a special episode on ME Awareness Day.

We will be joined by three unique individuals with distinct backgrounds and expertise related to myalgic encephalomyelitis (ME). Our guests include:

Ryan Prior: Ryan is a journalist, film producer, and social entrepreneur from Atlanta, GA. A former writer for The Daily Beast and USA Today, he is now executive producer and writer of the feature film Forgotten Plague (http://mecfsdocumentary.com/; previous working title: The Blue Ribbon). The documentary focuses on the role that major new trends in Big Data and genomic medicine play in addressing ME/CFS and transforming the future of medicine. In conjunction with the film, he is co-founder of the Blue Ribbon Foundation which will promote the documentary and install first-year medical students at top neuro-immune institutes.

Leonard Jason: Leonard is a professor of psychology at DePaul University in Chicago, Illinois, where he also directs the Center for Community Research. His chief professional interests include the study of chronic fatigue syndrome, smoking, smoking cessation, and Oxford House recovery homes for substance abuse. His interest in chronic fatigue syndrome began when he was diagnosed with the condition in 1990 after having mononucleosis. Check out his book "Principles of Social Change": http://www.amazon.com/Principles-So...=sr_1_1?s=books&ie=UTF8&qid=1399569615&sr=1-1

Jeannette Burmeister: Jeannette is an attorney, ME activist, writer, mother, and wife. You can follow her health journey on Thoughts About ME: http://thoughtsaboutme.com/

I think you have to sign-up to watch: https://plus.google.com/u/1/events/ch7odrdv6aqknf1adkfs09h1kvo

Not sure with this new stuff :confused::confused::D

This was the announcement on Facebook the other day: https://www.facebook.com/canaryfilm/posts/396562197148186
 

Firestormm

Senior Member
Messages
5,055
Location
Cornwall England
Canary in a Coal Mine

Have you seen Llewellyn King's call for a permanent presence in Washington? Here he explains what he believes we need in order to make real progress for public research funding for ME in the US.

Join us TOMORROW, May 12th at 3pm ET for a conversation with Llewellyn King, Ryan Prior, Jeanette Burmeister, Lenny Jason, and Jen Brea. Ask questions, celebrate what we've achieved, and share your ideas for change! http://j.mp/thriveMay12

 

Desdinova

Senior Member
Messages
276
Location
USA
Not a bad episode. Although I have to respectfully disagree about there being "no Villains" part, near the end.
 

Nielk

Senior Member
Messages
6,970
Jeanette Burmeister posted on FB:

Reminder: ME Awareness Day Google Hangout at 3pm ET (7pm GMT) We've just enabled the Q&A app! http://j.mp/thriveMay12

Please post your questions for Leonard Jason (ME researcher and author of The Principles of Social Change), Ryan Prior (The Forgotten Plague), Beth Mazur (Heal Click), Jeannette Burmeister (Thought About ME), Jennifer Brea (Canary in a Coal Mine), and Llewellyn King (White House Chronicles & MECFS Alert). The theme is: a year in review & how we can make even more progress moving forward.

The show will focus on the US context, but I think some of the strategies and lessons we'll discuss have relevance to advocates fighting the good fight, wherever you may be.

It will be starting in less then 2 hours. Please post your questions.
 

Nielk

Senior Member
Messages
6,970
@Nielk Err... how's this work then? I am on the page in Google (even downloaded a hangout app). Does it suddenly appear as a video I can watch? Thanks!!
No video. Just the questions appear on the right when you press the video. To post questions you have to scroll down to the green button.
 

Firestormm

Senior Member
Messages
5,055
Location
Cornwall England
I downloaded this 'hangout app' - don't laugh - and then I click on it. And, well, there I am on video in my dressing gown on the sofa - and it says 'Are you the first to arrive?' And I am like: Holy crap! I am not being in this programme ROFL and made a speedy exit. What that was all about I care not :rofl::rofl:

So typical of me.

Thanks guys. I shall wait for a video to appear then or for something to happen :)
 

Sushi

Moderation Resource Albuquerque
Messages
19,935
Location
Albuquerque
For those confused by the technology, just click on the video play button on the page and you're in!