In 1988, in college, I and another girl had EBV. She had to leave school and I stayed on. Came home that summer, was exhausted after several months of illness and had my wisdom teeth out and that was it. That was the straw. 18 years old. I remember the air conditioner bothering me. The sound of it. I had adrenaline pouring out of me and thyroid was a mess after EBV. It was like a bomb hit me. Sophomore year of college...was home and then tried to return. Could only take 3 classes and then had GERD And was hospitalized for GERD for a month.
The symptoms were all over the place amd driving me crazy. Muscle spasms, anxiety, GERD, menstrual problems. Developed an all over body rash for a year in 1992, then endo and PCOS in 1993 and then back problems. Went on a serious diet for elimination of sugar and took a ton of vitamins and got "better" as in...able to go back to college part time and work and not having endo so bad.
1999, went off of vitamins, developed horrible endo, IC was diagnosed and then candida. Was 29, had to quit college. Was in college for 10 years trying to complete my 4 year degree. Never finished. One year left.
I always felt hormones were huge for me. EBV was huge for me. Titers are still high.
2002, Fibro came on. 2008, early perimenopause and absolute hell with food allergies. Back up....2002...MCS came on. So....it gets worse as years pass.
Now, adrenals shot, liver a mess. All kinds of stuff. Immune system went under with hormones...I AM CONVINCED. Colds and flus and bacteria and viruses in full force. Immuno wants me to treat viruses full time due to lymphopenia. On Valcyte.
Was just diagnosed with Idiopathic CD4 Lymphopenia and CVID and Sjogrens!
SERIOUSLY??????
And, I am still here, but wish I was dead sometimes...yes, I said it. The CVID and Lympopenia has me a bit scared. My lympocytes are so low it's like I have AIDS. I am supposed to contact the NIH.
I am being told this is not all CFS, but guess what....to me it still is because I have PEM and all that CFS folks have and I have had it for years and I am still a CFS person. After 25 years to tell me...this isn't CFS..it's bullocks to me because it's all I know and I have the neurological stuff. So, I have CFS and CVID and all that I mentioned.
NEVER....ENDING...IMMUNE...DISORDER.
Gets worse.